Pain assessment and treatment in patients with mucopolysaccharidoses: a French multicentric pediatric study
A routine pain assessment protocol for MPS patients is required that covers the entire spectrum of pain and can be adapted for every type of patient, including those with neurocognitive and motor impairments.
Authors
- Magali Gorce (ORCID: https://orcid.org/0000-0001-8089-1429)
- Léna Damaj (ORCID: https://orcid.org/0000-0001-5364-7084)
- M. Tardieu
- Delphine Genevaz
- Sophie Vibet
- Marjorie Blin
- Didier Lacombe (ORCID: https://orcid.org/0000-0002-8956-2207)
- F. Labarthe (ORCID: https://orcid.org/0000-0001-9788-9667)
- Magalie Barth (ORCID: https://orcid.org/0000-0001-7240-7932)
Institutions
- Université de Tours (FR)
- Université de Bordeaux (FR)
- Inserm (FR)
- Centre Hospitalier Universitaire de Toulouse (FR)
- Vaincre la Mucoviscidose (FR)
- Centre Hospitalier Universitaire de Tours (FR)
- Centre Hospitalier Universitaire d'Angers (FR)
- Centre Hospitalier Universitaire de Rennes (FR)
- Université d'Angers (FR)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2025-11-12
- DOI
- https://doi.org/10.1186/s13023-025-04065-9
- Primary Topic
- Lysosomal Storage Disorders Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00