Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challenges
Caregivers of children with dementia experience critical unmet needs and shoulder enduring burdens throughout the course of their child's progressive decline and following bereavement. Coordinated centers of expertise, equipped to deliver expert medical and integrated psychosocial support, are essential to more effectively support families affected by childhood dementia.
Authors
- John D. Kershaw
- Nancy Briggs (ORCID: https://orcid.org/0000-0002-1134-0807)
- Claire Elizabeth Wakefield (ORCID: https://orcid.org/0000-0001-7704-7067)
- Suzanne M. Nevin (ORCID: https://orcid.org/0000-0003-1679-0142)
- Michelle A. Farrar (ORCID: https://orcid.org/0000-0002-4472-0902)
- Megan Maack (ORCID: https://orcid.org/0000-0003-0870-0338)
- Kristina L. Elvidge (ORCID: https://orcid.org/0000-0002-9763-344X)
- Lauren Kelada (ORCID: https://orcid.org/0000-0001-9428-8807)
- Emilio Ros (ORCID: https://orcid.org/0000-0002-2573-1294)
- Gail Hilton
Institutions
- Statistics New Zealand (NZ)
- UNSW Sydney (AU)
- Dementia Collaborative Research Centres (AU)
- Stanford Health Care (US)
- Children's Health Council (US)
- St Vincent's Clinic (AU)
- Sydney Children's Hospital (AU)
- Sydney Children’s Hospitals Network (AU)
- Neuroscience Research Australia (AU)
Publication Details
- Journal
- Journal of Pediatric Psychology
- Published
- 2025-11-12
- DOI
- https://doi.org/10.1093/jpepsy/jsaf095
- Primary Topic
- Grief, Bereavement, and Mental Health
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Medical Research Council
- National Health and Medical Research Council