Reflections on the impact of the Lived Experience Group in the James Lind Alliance Palliative and End of Life Care Priority Setting Partnership Refresh
Forming a Lived Experience Group to support the refresh of the Palliative and End of Life Care Priority Setting Partnership ensured that people with lived experience of dying, death and bereavement had a clear route for involvement in all stages of the project. This regular and consistent engagement required considerable resource but shaped the project in several ways and ultimately improved its quality.
Authors
- Anna Dawson
- Rashmi Kumar (ORCID: https://orcid.org/0000-0003-3444-1018)
- Jodie Crooks (ORCID: https://orcid.org/0000-0003-2574-4420)
- Briony F. Hudson (ORCID: https://orcid.org/0000-0002-2907-1764)
- Diana Robinson (ORCID: https://orcid.org/0000-0002-2627-2309)
- Alexandra Reece
- Jessica Bush
- Sabine Best (ORCID: https://orcid.org/0000-0002-9423-8110)
Institutions
- Berry Gardens (United Kingdom) (GB)
- University College London (GB)
- Marie Curie (GB)
Publication Details
- Journal
- Research Involvement and Engagement
- Published
- 2025-11-13
- DOI
- https://doi.org/10.1186/s40900-025-00774-4
- Citations
- 1
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 1.88
Funders
- UK Research and Innovation
- Motor Neurone Disease Association
- Economic and Social Research Council