Breaking barriers: centering researchers with lived experience in psychiatric neuroscience

Researchers with lived experience (RWLE) of serious mental illness or substance use disorders (SMI/SUD) bring critical dual expertise to psychiatric neuroscience as both scientists and individuals directly affected by the conditions they study. Yet their participation and leadership remain profoundly limited by entrenched stigma, disclosure risks that can obstruct promising career trajectories, lack of mentorship from senior RWLE, and the absence of structural protections against discrimination and exclusion. These systemic barriers silence voices that can help transform the field's understanding of mental illness and its biological underpinnings. Drawing on the authors' lived and/or professional experiences, this Perspective challenges the assumption that lived experience introduces bias, reframing it as a source of empirical strength, innovation, and epistemic diversity. Here, the authors propose structural reforms to reshape admissions, mentorship, and leadership pathways. Centering RWLE is both a scientific necessity and an ethical imperative for advancing a more equitable and representative psychiatric neuroscience.

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Publication Details

Journal
NPP—Digital Psychiatry and Neuroscience
Published
2025-11-13
DOI
https://doi.org/10.1038/s44277-025-00048-7
Citations
3
Primary Topic
Health and Medical Research Impacts
Type
article
Field-Weighted Citation Impact
5.64
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article

Breaking barriers: centering researchers with lived experience in psychiatric neuroscience

Brandon K. Staglin, Devin P. Effinger, Eric J. Nestler, Michael E. Cahill et al.
3 citations
NPP—Digital Psychiatry and Neuroscience
Health and Medical Research Impacts
5.64
article

Breaking barriers: centering researchers with lived experience in psychiatric neuroscience

Brandon K. Staglin, Devin P. Effinger, Eric J. Nestler, Michael E. Cahill, Noel A. Vest, Maya C. Schumer, Nev Jones, Uma R. Chatterjee
article en
3 citations

Abstract

Researchers with lived experience (RWLE) of serious mental illness or substance use disorders (SMI/SUD) bring critical dual expertise to psychiatric neuroscience as both scientists and individuals directly affected by the conditions they study. Yet their participation and leadership remain profoundly limited by entrenched stigma, disclosure risks that can obstruct promising career trajectories, lack of mentorship from senior RWLE, and the absence of structural protections against discrimination and exclusion. These systemic barriers silence voices that can help transform the field's understanding of mental illness and its biological underpinnings. Drawing on the authors' lived and/or professional experiences, this Perspective challenges the assumption that lived experience introduces bias, reframing it as a source of empirical strength, innovation, and epistemic diversity. Here, the authors propose structural reforms to reshape admissions, mentorship, and leadership pathways. Centering RWLE is both a scientific necessity and an ethical imperative for advancing a more equitable and representative psychiatric neuroscience.

NPP—Digital Psychiatry and NeuroscienceVol. 3(1)
Boston University (US), University of Wisconsin System (US), Allen Institute for Brain Science (US), Massachusetts Department of Public Health (US), University of Wisconsin–Madison (US), Harvard University (US), University of Pittsburgh (US), McLean Hospital (US), Lemuel Shattuck Hospital (US), One Mind (US), University of Colorado Anschutz Medical Campus (US)
Openalex Percentile: Top 4%
Health and Medical Research Impacts
5.64
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