Experiences on the implementation and maintenance of the Canadian Disability Participation Project: A mixed-methods study

Establishing a multidisciplinary network of researchers, trainees, and research users-such as the Canadian Disability Participation Project (CDPP)-is a promising approach to promote and support research partnerships and improve the application of disability research findings. This study aimed to 1) describe the implementation of the CDPP network over time and 2) explore members' experiences and reflections on the implementation and maintenance of the CDPP network and its partnerships. This mixed-methods study used survey data, collected among CDPP researchers, trainees and research users in the years 2018, 2019 and 2021, and interview data, collected at the end of the study period (2021/2022). Survey items, focused on network functioning and satisfaction (implementation), were analyzed using descriptive statistics. Interviews focused on members' experiences and reflections of the implementation and maintenance of the network and its partnerships, and were analyzed using reflexive thematic analysis. Members were positive about how the network functioned and satisfied with how the CDPP implemented its plans. Over 70% of the survey participants indicated that it was easy to work with researchers/research users in the CDPP network (2018: 71%; 2019: 85%; 2021: 70%). Interview participants discussed the strong leadership of the network, the lack of feeling meaningfully connected to the network as a whole, and key principles that guide the success of individual research partnerships (implementation). Participants reported that (human) resources and continued leadership are needed to sustain the network and its partnerships long-term (maintenance). This study provides unique longitudinal insights into the implementation of a multidisciplinary network of research partnerships. The findings highlighted that building and sustaining a large network of partnerships is challenging and requires strong and continued leadership. To conclude, we describe lessons learned for research partnership capacity building and the translation of disability research to practice and policy.

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Publication Details

Journal
PLoS ONE
Published
2025-11-13
DOI
https://doi.org/10.1371/journal.pone.0334835
Primary Topic
Health Policy Implementation Science
Type
article
Field-Weighted Citation Impact
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article

Experiences on the implementation and maintenance of the Canadian Disability Participation Project: A mixed-methods study

Heather L. Gainforth, Sarah Lawrason, Veronica Allan, Alanna Shwed et al.
PLoS ONE
Health Policy Implementation Science
article

Experiences on the implementation and maintenance of the Canadian Disability Participation Project: A mixed-methods study

Heather L. Gainforth, Sarah Lawrason, Veronica Allan, Alanna Shwed, Kathleen A. Martin Ginis, Femke Hoekstra, Anita Kothari, Christopher B. McBride
article en

Abstract

Establishing a multidisciplinary network of researchers, trainees, and research users-such as the Canadian Disability Participation Project (CDPP)-is a promising approach to promote and support research partnerships and improve the application of disability research findings. This study aimed to 1) describe the implementation of the CDPP network over time and 2) explore members' experiences and reflections on the implementation and maintenance of the CDPP network and its partnerships. This mixed-methods study used survey data, collected among CDPP researchers, trainees and research users in the years 2018, 2019 and 2021, and interview data, collected at the end of the study period (2021/2022). Survey items, focused on network functioning and satisfaction (implementation), were analyzed using descriptive statistics. Interviews focused on members' experiences and reflections of the implementation and maintenance of the network and its partnerships, and were analyzed using reflexive thematic analysis. Members were positive about how the network functioned and satisfied with how the CDPP implemented its plans. Over 70% of the survey participants indicated that it was easy to work with researchers/research users in the CDPP network (2018: 71%; 2019: 85%; 2021: 70%). Interview participants discussed the strong leadership of the network, the lack of feeling meaningfully connected to the network as a whole, and key principles that guide the success of individual research partnerships (implementation). Participants reported that (human) resources and continued leadership are needed to sustain the network and its partnerships long-term (maintenance). This study provides unique longitudinal insights into the implementation of a multidisciplinary network of research partnerships. The findings highlighted that building and sustaining a large network of partnerships is challenging and requires strong and continued leadership. To conclude, we describe lessons learned for research partnership capacity building and the translation of disability research to practice and policy.

PLoS ONEVol. 20(11)
Western University (CA), University of British Columbia (CA), Kelowna General Hospital (CA), Spinal Cord Injury BC (CA), Canadian Sport Centre Pacific (CA), International Collaboration On Repair Discoveries (CA), University of British Columbia, Okanagan Campus (CA), Okanagan University College (CA)
Openalex Percentile: Top 49%
Health Policy Implementation Science
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