Exploring the transition: a qualitative feasibility study on caregiver needs for children discharged from hospital to home

The transition from hospital to home for children and their caregivers has been understudied, particularly in the context of children with complex illnesses. This pilot study aimed to explore caregivers' and nurses' perceptions of unmet needs during this transition and to make recommendations for future research. In this qualitative study, data were collected through separately conducted focused group discussions with caregivers (n = 6) and nurses (n = 6). The discussions were facilitated by an experienced qualitative researcher, ensuring an unbiased approach. Emergent themes were categorized into four areas: (1) Insufficient Caregiver Involvement in Child Care (2) Knowledge Gaps Hindering Effective Post-Transition Care (3) Barriers to Accessing Community Health Resources, and (4) Evolving Perspectives on Transition Care. Findings suggest significant opportunities to enhance paediatric transition care practices and better prepare caregivers to shift from hospital to home. Thematic analysis, following Braun and Clarke's (2006) framework, was used to analyze the data.