BIPOC Experiences of (anti-)Racist Patient Engagement in Adolescent and Young Adult Oncology Research: an Electronic Delphi Study
<strong>Aims:</strong> To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. <strong>Materials & methods:</strong> Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. <strong>Results:</strong> Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. <strong>Conclusion:</strong> The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity.
Authors
- Simon J Davies (ORCID: https://orcid.org/0000-0002-8496-7571)
- Rachel Brandon (ORCID: https://orcid.org/0000-0002-0335-7588)
- Gail Betz (ORCID: https://orcid.org/0000-0002-4783-0701)
- José M. Causadías (ORCID: https://orcid.org/0000-0001-8249-5497)
- Jay Carter
- Haelim Lee (ORCID: https://orcid.org/0000-0002-9607-4535)
- Laura E. Helbling (ORCID: https://orcid.org/0000-0001-8549-3155)
- C. Simmons (ORCID: https://orcid.org/0000-0001-9783-7891)
- Mark A. Lewis (ORCID: https://orcid.org/0000-0001-8633-6557)
- Thuli Katerere-Virima (ORCID: https://orcid.org/0000-0002-7789-7114)
- Michael Roth (ORCID: https://orcid.org/0000-0002-6411-8353)
- Megan Gilman
- Bria N Thomas (ORCID: https://orcid.org/0000-0001-6284-3343)
- Trenette Clark Goings (ORCID: https://orcid.org/0000-0001-6992-4824)
- Christabel K. Cheung (ORCID: https://orcid.org/0000-0003-0721-7053)
- Kimberly Ann Miller (ORCID: https://orcid.org/0000-0002-0742-3730)
- Frantz M Berthaud (ORCID: https://orcid.org/0000-0001-9744-7500)
- Valentina A Ross (ORCID: https://orcid.org/0000-0001-7668-9690)
- Reginald Tucker‐Seeley (ORCID: https://orcid.org/0000-0001-6544-273X)
- Laundette P. Jones (ORCID: https://orcid.org/0000-0002-9614-1363)
- Gilberto Lopes (ORCID: https://orcid.org/0000-0002-7115-4942)
Institutions
- University of North Carolina at Chapel Hill (US)
Publication Details
- Journal
- UNC Libraries
- Published
- 2025-02-22
- DOI
- https://doi.org/10.17615/xkh7-km61
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Memorial Sloan-Kettering Cancer Center