DISP-38. Analyzing cultural preferences to improve patient satisfaction in neuro-oncologic care

Abstract BACKGROUND Glioblastoma patients require extensive care, placing a high burden on caregivers. Previous studies have found that when compared to other cancers, caregiver burden was significantly higher for those caring for glioblastoma patients. Early caregiver burnout can lead to premature de-escalation of cancer directed care which ultimately leads to poor outcomes. Patients and caregivers with different ethnic backgrounds have different preferences for clinical care. METHODS We conducted a survey of glioblastoma patients and their caregivers who received longitudinal treatment at our institution from 2021 to 2024 to understand preferences of various aspects of outpatient care. Patients were interviewed by investigators and completed a validated questionnaire assessing preferences in the delivery of care. RESULTS Of 37 glioblastoma patients who received longitudinal neurooncological care at our institution, 24 agreed to participate. Patients were divided in to various ethnic groups; Caucasians (46%), Hispanic (33%), and Other ethnic groups (21%). Other ethnic groups included; African American (8%), Asian (5%), Polish (5%) and Ukrainian (3%). When disclosing terminal diagnosis Caucasians and Other ethnic groups favored family centered model than patient autonomy model. Hispanics preferred patient autonomy model. Caucasians and Other ethnic groups preferred reviewing brain MRI images with the physician. All ethnic groups preferred direct contact with the treating team after working hours for emergent and non-emergent issues which decreased number of ER visits. All ethnic groups preferred same day appointments for scans and physician consultation. Caucasians preferred for end-of-life discussion at time of disease recurrence when there are limited treatment options while, Hispanic and Other ethnic groups preferred this discussion early in the course of disease. CONCLUSIONS Our study helps understand patient and caregiver preferences in clinical neuro-oncologic care in different ethnic groups to provide high quality compassionate care to brain tumor patients. This insight could be used as a framework for developing policies in outpatient neuro-oncology settings that better fit the needs of diverse patient populations.