DISP-20. Participatory co-design of a low-grade glioma community health education program

Abstract BACKGROUND Low-grade glioma (LGG) is a form of brain cancer associated with longer-term survivorship, but significant differences exist in treatment and outcomes for certain communities. The LGG Community Health Education (CHE) program aims to address these differences by providing culturally-tailored educational resources for people with LGG from the Hispanic/Latino (H/L) community. METHODS Participatory co-design of the LGG CHE program involved engaging H/L community liaisons and International LGG Registry Research Advisory Council (RAC) members and conducting a Design Thinking Workshop (DTW). The RAC, composed of individuals with LGG (including those identifying as H/L), caregivers, clinicians, researchers, and advocates, co-designed educational materials with the research team. The DTW involved RAC members, health education organizations, genetic counselors, and other experts. Themes identified during the DTW included enhancing communication about genomic and medical information, building trust, empowering patients and caregivers, addressing social and environmental factors, and enhancing access to patient-centered care. RESULTS The LGG CHE program includes a comprehensive content library covering topics including LGG biology/genomics, living with LGG, navigating medical care, addressing quality of life needs, and research opportunities. Educational resources were developed using fact sheets, webinars, blog posts, radio spots, and social media content in English and Spanish prepared by the LGG Registry team in partnership with H/L organizations. Education will be delivered by promotoras (community health workers) virtually, over 3-6 weeks. Session scripts and workbooks were co-developed with input from the RAC and promotoras, ensuring cultural relevance and effectiveness. A pilot evaluation will assess participant satisfaction and feasibility and acceptability of implementation using qualitative and quantitative methods. CONCLUSIONS The LGG CHE program addresses disparities in LGG treatment and outcomes by providing culturally tailored education to the H/L community. Future steps include refining the program before advancing to a trial to test its effectiveness and implementation at scale.