DISP-14. Standing strong together: Improving the care of patients with a brain tumour in Aotearoa (New Zealand)

Abstract The sudden diagnosis of a brain tumour propels patients and their whānau (family) into a confronting and distressing reality, often marked by profound emotional turmoil and uncertainty. Many experience a loss of control and an inability to navigate the fragmented and complex healthcare system. Patients with brain tumours consistently report unmet need across the continuum of care including a lack of clear information, limited psychosocial support, and inadequate culturally responsive care. Neurosurgery serves as a central service in neuro-oncology system through which all patients will pass through and pivotal in the diagnosis patient pathway. In this context, the role of the clinical nurse specialist in neuro-oncology plays a critical role in bridging the gap between interdisciplinary teams removing barriers to timely and equitable care and supporting patients across the diagnostic, surgical, pathologic, oncologic and palliative pathways. In Aotearoa (New Zealand), these challenges are further compounded by longstanding inequities in access to services, regional variations in care delivery and under addressed cultural needs particularly for our Māori and pacific populations. Recent national efforts to improve collaboration as a team through the development of the New Zealand Aotearoa Neuro-Oncology Society (NANOS) has facilitated the sharing of expertise and alignment of best practice across research institutes, hospitals and the Brain Tumour Support (BTSNZ) charity. With the shared goal of aligning key national priorities amongst organisations which includes the development of a New Zealand Brain Tumour Registry. This presentation will identify the challenges and opportunities within New Zealand in the area of neuro-oncology and the importance of team work, communication, co-ordination and cultural safety. This may also hold relevance and applicability for other countries.