National Australian home parenteral nutrition registry: Development process and initial data insights
Development of a national HPN registry in Australia has allowed accurate recording of HPN usage and resourcing allocation. National registry development is complex, requiring extensive clinician commitment, particularly when financial support was not available to aid registry development and management. Both this and heterogeneous ethics approval requirements were major barriers.
Authors
- K. Joy Robertson
- Frank M.P. van Haren (ORCID: https://orcid.org/0000-0001-8037-4229)
- Juliana Puppi
- Wei Ling Teh
- Ola Niewiadomski (ORCID: https://orcid.org/0000-0003-3476-0422)
- Brooke Chapman (ORCID: https://orcid.org/0000-0002-7251-8314)
- Suzie Daniells
- Darren Wong (ORCID: https://orcid.org/0000-0003-1490-0547)
- Pearl Chan (ORCID: https://orcid.org/0000-0002-9979-516X)
- Gil Hardy (ORCID: https://orcid.org/0000-0002-3926-0526)
- Morgan Brown (ORCID: https://orcid.org/0000-0002-2729-8244)
- Katerina Angstmann
- Belinda Errington
- Charmaine Chai (ORCID: https://orcid.org/0000-0001-5777-6457)
- Emma Whelan (ORCID: https://orcid.org/0000-0002-5276-1907)
- Kate Dehlsen
- Darcy Holt (ORCID: https://orcid.org/0000-0001-7752-6279)
- Sharon Carey (ORCID: https://orcid.org/0000-0003-4155-5240)
- S. L. Nightingale (ORCID: https://orcid.org/0000-0003-0986-7105)
- Kenji So
- Tanya Collins
- Emma Osland (ORCID: https://orcid.org/0000-0003-1144-1787)
- Chris Walker (ORCID: https://orcid.org/0000-0001-9132-8965)
- Callum B. Pearce (ORCID: https://orcid.org/0000-0001-7368-7921)
- Julia Fox
- Neal Martin
- Lina Briek (ORCID: https://orcid.org/0009-0009-3521-2760)
- Keats Broom
- Peter Cocking
- Melanie Vanderwilk
- Sharifah R. Syed Mustaffa
Institutions
- The University of Sydney (AU)
- Royal Children's Hospital (AU)
- Royal Brisbane and Women's Hospital (AU)
- Royal Prince Alfred Hospital (AU)
- Royal Perth Hospital (AU)
- Royal North Shore Hospital (AU)
- John Hunter Hospital (AU)
- Fiona Stanley Hospital (AU)
- Women's and Children's Hospital (AU)
- Princess Alexandra Hospital (AU)
- Children's Hospital at Westmead (AU)
- American Society for Parenteral and Enteral Nutrition (US)
- Flinders Medical Centre (AU)
- Canberra Hospital (AU)
- St Vincent's Hospital Melbourne (AU)
- Monash Children’s Hospital (AU)
- Prince of Wales Hospital (AU)
- Monash Health (AU)
- St George Hospital (AU)
- Sydney Children's Hospital (AU)
- John Hunter Children's Hospital (AU)
- St. George Hospital (IN)
- Austin Health (AU)
- Children's Health Queensland Hospital and Health Service (AU)
- Monash University (AU)
Publication Details
- Journal
- Journal of Parenteral and Enteral Nutrition
- Published
- 2025-11-12
- DOI
- https://doi.org/10.1002/jpen.70027
- Primary Topic
- Clinical Nutrition and Gastroenterology
- Type
- article
- Field-Weighted Citation Impact
- 0.00