‘I want to be generous, but I only have limited energy’: a qualitative study of amyotrophic lateral sclerosis patients’ preferences for clinical trials participation

Given the multifaceted physical, and emotional challenges faced by ALS patients, this study recommends prioritizing patient preferences in future CTs and intervention designs, while advocating for targeted grants and sustained funding that supports ALS clinical trials. This will better align with the needs and expectations of ALS patients, thereby enhancing trial participation and overall patient satisfaction.