Economic Cost of Current and Alternative Models of Multidisciplinary Care of Juvenile‐Onset Huntington's Disease
We document the high cost of care in JoHD, particularly as the disease progresses towards the later stages. We present estimates from modeling the effects of providing a systematic MDT approach to the care of patients and families with JoHD. These data have clear implications in the consideration of future JoHD models of care in an increasingly digital age and can be developed further as disease modifying treatments become available.
Authors
- Aileen K. Ho (ORCID: https://orcid.org/0000-0002-2581-126X)
- Jill Thompson (ORCID: https://orcid.org/0000-0001-9256-1208)
- Tracey Young (ORCID: https://orcid.org/0000-0001-8467-0471)
- P. Curtis
- Oliver Quarrell (ORCID: https://orcid.org/0000-0002-3818-9051)
- Helen Santini
Institutions
- Huntington's Disease Association (GB)
- Sheffield Children's Hospital (GB)
- University of Reading (GB)
- University of Sheffield (GB)
Publication Details
- Journal
- Movement Disorders Clinical Practice
- Published
- 2025-11-11
- DOI
- https://doi.org/10.1002/mdc3.70433
- Primary Topic
- Genetic Neurodegenerative Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00