“It's My Wish, We Need This Program”: Qualitative Reflections From People With High-Grade Brain Cancer Consenting to Postmortem Brain Donation
The sentiments expressed in the data indicate an overwhelmingly positive impact associated with consenting to brain donation. Consenting to a postmortem brain donation program can instill a sense of purpose and meaning while restoring a sense of control for those facing mortality. These data indicate that the prevailing caution and reluctance in consenting a patient to brain donation may be misplaced, preventing patients and their families from engaging with a program that can provide an invaluable source of hope, empowerment, and legacy.
Authors
- Melissa A. Carlson (ORCID: https://orcid.org/0000-0002-9450-8491)
- Cassandra P. Griffin (ORCID: https://orcid.org/0000-0003-4107-0921)
- Marjorie M. Walker (ORCID: https://orcid.org/0000-0002-7788-0056)
- James Lynam (ORCID: https://orcid.org/0000-0002-6742-820X)
- Christine Paul (ORCID: https://orcid.org/0000-0002-0504-5246)
Institutions
- Hunter Medical Research Institute (AU)
- Calvary Mater Newcastle Hospital (AU)
- University of Newcastle Australia (AU)
Publication Details
- Journal
- JCO Oncology Practice
- Published
- 2025-11-10
- DOI
- https://doi.org/10.1200/op-25-00375
- Primary Topic
- Organ Donation and Transplantation
- Type
- article
- Field-Weighted Citation Impact
- 0.00