“It's My Wish, We Need This Program”: Qualitative Reflections From People With High-Grade Brain Cancer Consenting to Postmortem Brain Donation

The sentiments expressed in the data indicate an overwhelmingly positive impact associated with consenting to brain donation. Consenting to a postmortem brain donation program can instill a sense of purpose and meaning while restoring a sense of control for those facing mortality. These data indicate that the prevailing caution and reluctance in consenting a patient to brain donation may be misplaced, preventing patients and their families from engaging with a program that can provide an invaluable source of hope, empowerment, and legacy.

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Publication Details

Journal
JCO Oncology Practice
Published
2025-11-10
DOI
https://doi.org/10.1200/op-25-00375
Primary Topic
Organ Donation and Transplantation
Type
article
Field-Weighted Citation Impact
0.00
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article

“It's My Wish, We Need This Program”: Qualitative Reflections From People With High-Grade Brain Cancer Consenting to Postmortem Brain Donation

Melissa A. Carlson, Cassandra P. Griffin, Marjorie M. Walker, James Lynam et al.
JCO Oncology Practice
Organ Donation and Transplantation
article

“It's My Wish, We Need This Program”: Qualitative Reflections From People With High-Grade Brain Cancer Consenting to Postmortem Brain Donation

Melissa A. Carlson, Cassandra P. Griffin, Marjorie M. Walker, James Lynam, Christine Paul
article en

Abstract

The sentiments expressed in the data indicate an overwhelmingly positive impact associated with consenting to brain donation. Consenting to a postmortem brain donation program can instill a sense of purpose and meaning while restoring a sense of control for those facing mortality. These data indicate that the prevailing caution and reluctance in consenting a patient to brain donation may be misplaced, preventing patients and their families from engaging with a program that can provide an invaluable source of hope, empowerment, and legacy.

JCO Oncology Practice
Hunter Medical Research Institute (AU), Calvary Mater Newcastle Hospital (AU), University of Newcastle Australia (AU)
Openalex Percentile: Top 56%
Organ Donation and Transplantation
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