Development of Data Transfer Ethics Framework (daTEF): A participatory approach to delivering evidence-based guidelines for healthcare data transfer
In summary, this study emphasizes the importance of a standardized data-sharing platform, focusing on protecting intellectual property rights and establishing a centralized data repository in Nepal. It also recommends educational reforms, legal measures, well-defined agreements, and dedicated oversight to ensure data integrity and security, while streamlining sample transfer processes to enhance transparency and scientific progress in Nepal's research landscape.
Authors
- Binod Rayamajhee (ORCID: https://orcid.org/0000-0003-3007-8901)
- Binu Shah
- Gopiram Syangtan (ORCID: https://orcid.org/0000-0001-5536-7828)
- Anurag Adhikari (ORCID: https://orcid.org/0000-0003-3168-0558)
- Manjula Bhattarai
- Minu Singh
- Sauhardra Manandhar (ORCID: https://orcid.org/0009-0001-6831-1708)
Institutions
- UNSW Sydney (AU)
- Nepal Development Research Institute (NP)
- Macquarie University (AU)
Publication Details
- Journal
- PLoS ONE
- Published
- 2025-11-10
- DOI
- https://doi.org/10.1371/journal.pone.0336389
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00