Fractured Memories, Enduring Self: A Feminist Autoethnography of Cognitive Impairment in Multiple Sclerosis

Cognitive impairment in multiple sclerosis quietly fractures memory, identity, and agency long before it is clinically acknowledged. This autoethnography examines the lived experience of cognitive disruption through a feminist lens, where memory loss is not only a neurological event but a challenge to narrative authority, self-definition, and social credibility. Weaving personal narrative with critical inquiry, this work explores the tensions between clinical invisibility and existential disruption, highlighting how gendered expectations and epistemic injustice shape the experiences of women with cognitive disabilities. By situating fragmented memory within broader social, medical, and feminist discourses, this inquiry challenges traditional biomedical models and advocates for a narrative-centered approach to care. In doing so, it calls for structural changes in healthcare, research, and policy that recognize and validate cognitive decline's complex, lived realities.

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Publication Details

Journal
Qualitative Health Research
Published
2025-11-10
DOI
https://doi.org/10.1177/10497323251389893
Primary Topic
Empathy and Medical Education
Type
article
Field-Weighted Citation Impact
0.00
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article

Fractured Memories, Enduring Self: A Feminist Autoethnography of Cognitive Impairment in Multiple Sclerosis

Lisa Kelly
Qualitative Health Research
Empathy and Medical Education
article

Fractured Memories, Enduring Self: A Feminist Autoethnography of Cognitive Impairment in Multiple Sclerosis

Lisa Kelly
article en

Abstract

Cognitive impairment in multiple sclerosis quietly fractures memory, identity, and agency long before it is clinically acknowledged. This autoethnography examines the lived experience of cognitive disruption through a feminist lens, where memory loss is not only a neurological event but a challenge to narrative authority, self-definition, and social credibility. Weaving personal narrative with critical inquiry, this work explores the tensions between clinical invisibility and existential disruption, highlighting how gendered expectations and epistemic injustice shape the experiences of women with cognitive disabilities. By situating fragmented memory within broader social, medical, and feminist discourses, this inquiry challenges traditional biomedical models and advocates for a narrative-centered approach to care. In doing so, it calls for structural changes in healthcare, research, and policy that recognize and validate cognitive decline's complex, lived realities.

Qualitative Health Research
Texas Woman's University (US)
Openalex Percentile: Top 60%
Empathy and Medical Education
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Fractured Memories, Enduring Self: A Feminist Autoethnography of Cognitive Impairment in Multiple Sclerosis — Lisa Kelly · Qualitative Health Research (2025) | TGRS Research Map | TGRS