Organizational and behavioral models in the management of patients with developmental and epileptic encephalopathy, Lennox-Gastaut syndrome and Dravet syndrome in Italy: a focus on the transition from pediatric to adult care
The lack of standardization in transition pathways represents a critical barrier to ensuring continuity of care for DEE and LGS patients. Developing structured, best-practice-based transition models, enhancing caregiver support, and fostering a multidisciplinary approach are essential to improve quality of life and ensure effective disease management into adulthood.
Authors
- Emanuele Corsaro
- L Corsaro
- Antonietta Coppola (ORCID: https://orcid.org/0000-0002-4845-4293)
- Carlo Di Bonaventura (ORCID: https://orcid.org/0000-0003-1890-5409)
- Giancarlo Di Gennaro (ORCID: https://orcid.org/0000-0003-3446-0788)
- Gianluca Vaccaro
- Lorena Trivellato
Institutions
- Policlinico Umberto I (IT)
- Istituto Neurologico Mediterraneo (IT)
- University of Catania (IT)
- FIT Consulting (Italy) (IT)
- Federico II University Hospital (IT)
- Deutsches Archäologisches Institut, Abteilung Rom (IT)
- Higher Institute for Qualitative Studies (EG)
- Unidad de Investigación en Salud Digital (ES)
- Sapienza University of Rome (IT)
Publication Details
- Journal
- Frontiers in Health Services
- Published
- 2025-11-07
- DOI
- https://doi.org/10.3389/frhs.2025.1632564
- Primary Topic
- Epilepsy research and treatment
- Type
- article
- Field-Weighted Citation Impact
- 0.00