Advocacy for health rights with a group of patients with chronic diseases in a low-income neighbourhood in Ecuador

This participatory process, led by local facilitators from the Chimbacalle Diabetes Patients' Club, followed three key steps: social diagnosis (using participatory tools such as a sociogram and SWOT analysis), development of a community narrative through digital storytelling, and process evaluation. Through this approach, participants identified support groups as essential connectors between patients and the healthcare system and highlighted their potential in prevention and health promotion, while also emphasizing the need for institutional support, infrastructure, and accessibility. By centring lived experiences, such as environmental stressors, emotional well-being, and peer support, storytelling helped surface issues often overlooked in clinical guidelines. The experience illustrates how participatory methodologies and storytelling can enhance communication, foster empathy toward the often-invisible challenges of living with Type 2 diabetes, and help drive advocacy strategies that translate evidence into context-sensitive actions rooted in social realities and community needs.

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Publication Details

Journal
BMC Research Notes
Published
2025-11-06
DOI
https://doi.org/10.1186/s13104-025-07542-3
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.00

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article

Advocacy for health rights with a group of patients with chronic diseases in a low-income neighbourhood in Ecuador

Ana Lucía Torres-Castillo, Sergio Morales-Garzón, Lucy Anne Parker, Elisa Chilet‐Rosell et al.
BMC Research Notes
Mental Health and Patient Involvement
article

Advocacy for health rights with a group of patients with chronic diseases in a low-income neighbourhood in Ecuador

Ana Lucía Torres-Castillo, Sergio Morales-Garzón, Lucy Anne Parker, Elisa Chilet‐Rosell, Marta Puig‐García, Francisco Barrera-Guarderas, J. Delgado, Ma. José Sanchís-Ramón
article en

Abstract

This participatory process, led by local facilitators from the Chimbacalle Diabetes Patients' Club, followed three key steps: social diagnosis (using participatory tools such as a sociogram and SWOT analysis), development of a community narrative through digital storytelling, and process evaluation. Through this approach, participants identified support groups as essential connectors between patients and the healthcare system and highlighted their potential in prevention and health promotion, while also emphasizing the need for institutional support, infrastructure, and accessibility. By centring lived experiences, such as environmental stressors, emotional well-being, and peer support, storytelling helped surface issues often overlooked in clinical guidelines. The experience illustrates how participatory methodologies and storytelling can enhance communication, foster empathy toward the often-invisible challenges of living with Type 2 diabetes, and help drive advocacy strategies that translate evidence into context-sensitive actions rooted in social realities and community needs.

BMC Research NotesVol. 18(1)
Universitat de Miguel Hernández d'Elx (ES), Pontificia Universidad Católica del Ecuador (EC), Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública (ES)
European Commission
Openalex Percentile: Top 50%
Mental Health and Patient Involvement
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Advocacy for health rights with a group of patients with chronic diseases in a low-income neighbourhood in Ecuador — Ana Lucía Torres-Castillo, Sergio Morales-Garzón, et al. · BMC Research Notes (2025) | TGRS Research Map | TGRS