Co‐Producing Personalised Discharge Planning: Developing a Toolkit to Improve Caregiver Involvement in Hospital Transitions
This study was co-produced through a participatory action research (PAR) approach involving individuals with lived experience of caregiving, alongside health and social care professionals and voluntary sector representatives. Informal caregivers actively shaped the design, delivery and iterative development of the personalised discharge planning toolkit across four co-design workshops. Their insights informed key themes including recognition of caregiver identity, communication challenges and post-discharge support needs. Caregivers contributed to analysis and interpretation of findings through discussion, feedback and validation during and after workshops, ensuring the toolkit was grounded in real-world experiences and addressed the complexities of caregiving transitions.
Authors
- Tom Sanders (ORCID: https://orcid.org/0000-0002-9163-2964)
- Peter van der Graaf (ORCID: https://orcid.org/0000-0002-2466-2792)
- Christina Cooper (ORCID: https://orcid.org/0000-0001-7540-3312)
- Kathryn McEwan (ORCID: https://orcid.org/0000-0003-4063-035X)
- Frank Ho‐yin Lai (ORCID: https://orcid.org/0000-0003-0365-7000)
- Susan Carr (ORCID: https://orcid.org/0000-0003-4722-985X)
- Mitchell Hogg (ORCID: https://orcid.org/0000-0002-8362-5123)
- Sebastian Potthoff (ORCID: https://orcid.org/0000-0003-4580-8532)
- Maria Raisa Jessica Aquino (ORCID: https://orcid.org/0000-0002-3989-1221)
- Susan Jones (ORCID: https://orcid.org/0000-0002-3052-2542)
- Rakhshanda Hameed
Institutions
- Cumbria Northumberland Tyne and Wear NHS Foundation Trust (GB)
- Northumbria University (GB)
- Newcastle University (GB)
- Teesside University (GB)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-11-05
- DOI
- https://doi.org/10.1111/hex.70483
- Citations
- 1
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 2.82
Funders
- Northumbria University