Supporting infants with severe perinatal diagnoses, their families and healthcare providers: development of a perinatal palliative care program
We developed a PPC program based on existing international evidence and current PPC practices. This approach ensured both relevance and practical applicability. The program design is a strength, as it is grounded in evidence and shaped through active involvement of parents and healthcare providers, with attention to contextual tailoring. The program is now ready for pilot testing to assess feasibility and acceptability in clinical practice. Future implementation will require institutional support, contextual adaptation, and ongoing evaluation to ensure sustainable integration into perinatal care.
Authors
- Kristien Roelens (ORCID: https://orcid.org/0000-0003-0973-7554)
- Laure Dombrecht (ORCID: https://orcid.org/0000-0002-7174-4678)
- Filip Cools
- Kim Beernaert (ORCID: https://orcid.org/0000-0002-2520-3977)
- Ellen Roets (ORCID: https://orcid.org/0000-0003-2315-614X)
- Kenneth Chambaere (ORCID: https://orcid.org/0000-0001-6277-072X)
- Eve Van den Mooter (ORCID: https://orcid.org/0000-0002-3639-7615)
- Linde Goossens
Institutions
- Vrije Universiteit Brussel (BE)
- Ghent University Hospital (BE)
- Ghent University (BE)
- Universitair Ziekenhuis Brussel (BE)
Publication Details
- Journal
- BMC Palliative Care
- Published
- 2025-11-05
- DOI
- https://doi.org/10.1186/s12904-025-01923-y
- Primary Topic
- Neonatal Respiratory Health Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Fonds Wetenschappelijk Onderzoek
- Vlaamse regering