Which demographic characteristics are associated with willingness to take part in recontact studies? A cross-sectional study
Our findings highlight that willingness to participate in health research studies, consent to data linkage, and data sharing varies across demographic groups. Inclusive recruitment and retention strategies must be developed to encourage participation and retention in follow-up studies, especially among historically underserved groups.
Authors
- Ash Routen (ORCID: https://orcid.org/0000-0001-5651-4228)
- Andrew Willis (ORCID: https://orcid.org/0000-0002-9671-2162)
- Safoora Gharibzadeh (ORCID: https://orcid.org/0000-0003-4535-4040)
- Zara Kayani (ORCID: https://orcid.org/0009-0009-1201-6994)
- Kamlesh K. Khunti (ORCID: https://orcid.org/0000-0003-2343-7099)
Institutions
- University of Leicester (GB)
- University College Cork (IE)
- Leicester General Hospital (GB)
Publication Details
- Journal
- PLoS ONE
- Published
- 2025-11-04
- DOI
- https://doi.org/10.1371/journal.pone.0335986
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00