Development of the SAVE study protocol to use lived experience to assess the value of serious health-related suffering and palliative care
Exploration of suffering based on personal experience is primarily focused on high-income contexts and/or clinical care management. Evidence generated using the protocol, which focuses on responsiveness, can advance development of people-centered metrics and bolster the investment case to equitably expand access to palliative care worldwide. Importantly, it can shift priority-setting and practice towards high-value healthcare.
Authors
- Svetlana V. Doubova (ORCID: https://orcid.org/0000-0002-0521-7095)
- Afsan Bhadelia (ORCID: https://orcid.org/0000-0003-4650-280X)
- Natalie Greaves (ORCID: https://orcid.org/0000-0003-0960-222X)
- Felícia Marie Knaul (ORCID: https://orcid.org/0000-0002-0512-4788)
Institutions
- University of Miami (US)
- El Colegio de México (MX)
- University of California, Los Angeles (US)
- Mexican Social Security Institute (MX)
- Purdue University West Lafayette (US)
- University of the West Indies (BB)
- Tecnológico de Monterrey (MX)
Publication Details
- Journal
- Communications Medicine
- Published
- 2025-11-04
- DOI
- https://doi.org/10.1038/s43856-025-01154-5
- Citations
- 1
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 2.82
Funders
- U.S. Department of State
- Purdue University
- University of Miami
- Merck KGaA
- Fundación Mexicana para la Salud
- Instituto Mexicano del Seguro Social
- EMD Serono
- Bureau of Educational and Cultural Affairs
- Medical Research Council