Personalised prevention: what patients and citizen advocates want for better engagement – a qualitative study
Enhancing patient and public engagement in personalised prevention requires more focus on communication, inclusivity, and secure data use. The findings provide actionable insights, promoting systematic engagement across Research, Care, and Governance. Clear information about prevention strategies and treatment options must be accessible, while diverse voices should be represented in decision-making. Collaboration with communities and better use of patient data can enhance prevention efforts. Policies should ensure ethical implementation, address data protection, and promote equity, transparency, and patient and public empowerment in healthcare, ultimately fostering a more inclusive approach to personalised prevention.
Authors
- Lidewij Henneman (ORCID: https://orcid.org/0000-0003-3531-0597)
- Daniela Quaggia
- Martina C. Cornel (ORCID: https://orcid.org/0000-0002-5397-5544)
- Carla van El (ORCID: https://orcid.org/0000-0003-2201-2320)
- Loes Lindiwe Kreeftenberg (ORCID: https://orcid.org/0000-0003-1261-2787)
- Eleonora De Luca (ORCID: https://orcid.org/0000-0003-3893-2869)
- Claudia Louati
- Yasemin Zeisl
Institutions
- Netherlands Institute for Neuroscience (NL)
- European Federation of Allergy and Airways Diseases Patients Associations (BE)
- Amsterdam University Medical Centers (NL)
- Centre for Science, Society and Citizenship (IT)
- Vrije Universiteit Amsterdam (NL)
Publication Details
- Journal
- BMC Public Health
- Published
- 2025-11-04
- DOI
- https://doi.org/10.1186/s12889-025-24925-0
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Commission
- HORIZON EUROPE Framework Programme