Treatment Modalities, Pain Response, and Referrals for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders: A Retrospective Study
This study identified patient perceptions on treatments and referrals that improved or made their pain worse. These findings provide a starting point for future treatment guidelines, decision aids, and research on patient-reported outcomes.
Authors
- Lauren Boucher (ORCID: https://orcid.org/0000-0003-3152-6155)
- Ashley A. Darakjian (ORCID: https://orcid.org/0009-0001-1913-9200)
- Katelyn A. Bruno (ORCID: https://orcid.org/0000-0001-8980-6059)
- Chrisandra Shufelt (ORCID: https://orcid.org/0000-0001-6886-9210)
- Barbara K. Bruce
- Dacre R. T. Knight (ORCID: https://orcid.org/0000-0001-6206-0680)
- Mary Carroll (ORCID: https://orcid.org/0000-0001-5396-221X)
- Merci S. Greenaway
- Shilpa N. Gajarawala (ORCID: https://orcid.org/0000-0002-8891-6157)
- DeLisa Fairweather (ORCID: https://orcid.org/0000-0003-3093-1810)
- Adam Zeman (ORCID: https://orcid.org/0000-0003-4875-658X)
- Jessica M. Gehin (ORCID: https://orcid.org/0000-0003-4757-416X)
- F. F. Wilson (ORCID: https://orcid.org/0000-0002-5552-0842)
- T. Buck
- David Shirey
Institutions
- Curtin University (AU)
- Jacksonville College (US)
- WinnMed (US)
- University of Florida (US)
- Mayo Clinic in Arizona (US)
- Mayo Clinic in Florida (US)
Publication Details
- Journal
- Mayo Clinic Proceedings Innovations Quality & Outcomes
- Published
- 2025-10-31
- DOI
- https://doi.org/10.1016/j.mayocpiqo.2025.100672
- Primary Topic
- Connective tissue disorders research
- Type
- article
- Field-Weighted Citation Impact
- 0.00