Diverse participation in HIV studies at a clinic level, differing to prevailing trends: a retrospective cohort study
The demographics of HIV study participants do not represent the global epidemic: women and minoritised ethnicities are underrepresented. This single-centre retrospective cohort study identified that clinic-level study participation was diverse, differing from prevailing trends. Gender and identifying as MSM (man-who-has-sex-with-men) were not associated with participation. Male participants were younger and more recently diagnosed. Participation in certain ethnicities surpassed the 4.3% average, including Black Caribbean women (8.30%) and Black African men and women (5.20% and 5.80% respectively). Participation patterns aligned with target populations of several ongoing studies. Clinic-level factors including the range of studies ‘on offer’ may contribute to participation diversity.
Authors
- Olivia Hughes (ORCID: https://orcid.org/0000-0001-9587-9430)
- Julianne Lwanga
- Alastair Duncan (ORCID: https://orcid.org/0000-0002-6284-8192)
- Kennedy Bashan Nkhoma (ORCID: https://orcid.org/0000-0002-2991-8160)
- Cassandra Fairhead (ORCID: https://orcid.org/0000-0002-5306-6965)
- Juliet Bosa
Institutions
- King's College London (GB)
- Guy's and St Thomas' NHS Foundation Trust (GB)
- Cicely Saunders International (GB)
- Berlin Institute of Health at Charité - Universitätsmedizin Berlin (DE)
Publication Details
- Journal
- Discover Viruses.
- Published
- 2025-10-31
- DOI
- https://doi.org/10.1007/s44370-025-00032-x
- Primary Topic
- HIV/AIDS Research and Interventions
- Type
- article
- Field-Weighted Citation Impact
- 0.00