Diverse participation in HIV studies at a clinic level, differing to prevailing trends: a retrospective cohort study

The demographics of HIV study participants do not represent the global epidemic: women and minoritised ethnicities are underrepresented. This single-centre retrospective cohort study identified that clinic-level study participation was diverse, differing from prevailing trends. Gender and identifying as MSM (man-who-has-sex-with-men) were not associated with participation. Male participants were younger and more recently diagnosed. Participation in certain ethnicities surpassed the 4.3% average, including Black Caribbean women (8.30%) and Black African men and women (5.20% and 5.80% respectively). Participation patterns aligned with target populations of several ongoing studies. Clinic-level factors including the range of studies ‘on offer’ may contribute to participation diversity.

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Publication Details

Journal
Discover Viruses.
Published
2025-10-31
DOI
https://doi.org/10.1007/s44370-025-00032-x
Primary Topic
HIV/AIDS Research and Interventions
Type
article
Field-Weighted Citation Impact
0.00
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article

Diverse participation in HIV studies at a clinic level, differing to prevailing trends: a retrospective cohort study

Olivia Hughes, Julianne Lwanga, Alastair Duncan, Kennedy Bashan Nkhoma et al.
Discover Viruses.
HIV/AIDS Research and Interventions
article

Diverse participation in HIV studies at a clinic level, differing to prevailing trends: a retrospective cohort study

Olivia Hughes, Julianne Lwanga, Alastair Duncan, Kennedy Bashan Nkhoma, Cassandra Fairhead, Juliet Bosa
article en

Abstract

The demographics of HIV study participants do not represent the global epidemic: women and minoritised ethnicities are underrepresented. This single-centre retrospective cohort study identified that clinic-level study participation was diverse, differing from prevailing trends. Gender and identifying as MSM (man-who-has-sex-with-men) were not associated with participation. Male participants were younger and more recently diagnosed. Participation in certain ethnicities surpassed the 4.3% average, including Black Caribbean women (8.30%) and Black African men and women (5.20% and 5.80% respectively). Participation patterns aligned with target populations of several ongoing studies. Clinic-level factors including the range of studies ‘on offer’ may contribute to participation diversity.

Discover Viruses.Vol. 2(1)
King's College London (GB), Guy's and St Thomas' NHS Foundation Trust (GB), Cicely Saunders International (GB), Berlin Institute of Health at Charité - Universitätsmedizin Berlin (DE)
Openalex Percentile: Top 63%
HIV/AIDS Research and Interventions
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Diverse participation in HIV studies at a clinic level, differing to prevailing trends: a retrospective cohort study — Olivia Hughes, Julianne Lwanga, et al. · Discover Viruses. (2025) | TGRS Research Map | TGRS