Patient-Centered Education Through A Massive Open Online Course (MOOC) for Patients With Multiple Myeloma and Caregivers: Descriptive Study of Knowledge Gains by French Association of Patients With Multiple Myeloma (AF3M) and French-Speaking Myeloma
Participation in this co-designed, patient-centered MOOC was associated with a statistically and educationally significant improvement in knowledge among patients with MM and their caregivers. The program was highly valued by users and demonstrates the feasibility of large-scale digital patient education in oncology. As a freely accessible, repeatable, and peer-supported resource, this MOOC complements medical consultations and traditional TPE programs. Its design and outcomes may serve as a model for future digital health education initiatives targeting other chronic diseases.
Authors
- Karen Kreuter
- Bernard Delcour
- Bertrand Arnulf (ORCID: https://orcid.org/0000-0001-7719-3611)
- Catherine Boccacio
- Mohamad Mohty (ORCID: https://orcid.org/0000-0002-7264-808X)
- Laurent Gillot
- Olivier Decaux
- Lionel Karlin
- Cécile Sonntag (ORCID: https://orcid.org/0009-0001-1616-2501)
- Cyrille Touzeau (ORCID: https://orcid.org/0000-0003-0275-2575)
- Hervé Avet‐Loiseau (ORCID: https://orcid.org/0000-0002-3050-0140)
- Alexis Talbot (ORCID: https://orcid.org/0000-0001-6734-413X)
- Margaret Macro (ORCID: https://orcid.org/0000-0002-0460-0658)
- Aurore Perrot (ORCID: https://orcid.org/0000-0003-0131-8689)
- Cyrille Hulin (ORCID: https://orcid.org/0000-0002-3749-5161)
- Laurent Frenzel (ORCID: https://orcid.org/0000-0002-6085-2163)
- Philippe Moreau (ORCID: https://orcid.org/0000-0003-1780-8746)
Institutions
- Hôpital Necker-Enfants Malades (FR)
- Université de Bordeaux (FR)
- Centre Hospitalier Universitaire de Bordeaux (FR)
- Centre Hospitalier Universitaire de Nantes (FR)
- Sorbonne Université (FR)
- Centre de Recherches en Cancérologie de Toulouse (FR)
- Assistance Publique – Hôpitaux de Paris (FR)
- Institut universitaire du cancer de Toulouse Oncopole (FR)
- Association Francaise contre les Myopathies (FR)
- Hôpital Saint-Antoine (FR)
- Hôpital Lyon Sud (FR)
- Centre Hospitalier Universitaire de Caen Normandie (FR)
- Hôpital Pontchaillou (FR)
- Intergroupe Francophone du Myélome (FR)
- Centre d'Investigation Clinique de Nantes (FR)
- Hôpital Saint-Louis (FR)
- Hôpitaux Universitaires de Strasbourg (FR)
- Hôpital d'Hautepierre (FR)
- UCSF Helen Diller Family Comprehensive Cancer Center (US)
Publication Details
- Journal
- JMIR Formative Research
- Published
- 2025-10-31
- DOI
- https://doi.org/10.2196/81225
- Primary Topic
- Multiple Myeloma Research and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00