Amputee Coalition: Contact Forms Submitted and Publications Disseminated Over the Past 5 Years (2019–2024)

ABSTRACT Introduction The Amputee Coalition is the largest nonprofit in the United States to serve people who have limb loss and limb difference, as well as their caregivers and healthcare professionals. The purpose of this manuscript is to distribute data from the past 5 years regarding the demographics of people who have requested resources and the number of resources disseminated. Data can help ensure resources reflect the community, identify knowledge translation gaps, and inform advocacy efforts. Methods A retrospective review of existing organizational records was performed. Data included variables for all contact forms submitted and publications distributed between 2019 and 2024, which were analyzed using descriptive statistics. Results Overall, 35,513 contact forms were submitted. The majority that reported: age were between 51–70 years old (n = 7589), and race were White (n = 5202). Most contact forms were from people who have limb loss and limb difference (n = 16,816), specifically amputees (n = 16,554) who reported: etiology related to diabetes (n = 4668), below or above knee level (n = 8843 and n = 5092, respectively), or using a wheelchair (n = 5892) and/or prosthesis (n = 4791). Overall, 95,972 publications were distributed, where the majority were indicative of new amputees (n = 9323), with titles such as “First Step” and “Beginning Your New Journey.” Discussion Amputee Coalition resource distribution for people who have limb loss and difference reflect US estimates according to age (older adults), level (lower-limb), and etiology (diabetes), with an emphasis on people who are new to having limb loss, but could focus on reaching people with various races and ethnicities to more accurately reflect the population of those who have limb loss and limb difference in the US. Conclusions Data directly informs endeavors to disseminate information to benefit individuals who have limb loss or limb difference. Clinical Relevance This information can inform strategies for resource creation and dissemination to ultimately help improve quality of life in this community.