Co‐Design of a Registry‐Based Tailored Follow‐up Service Intervention for People Living With Stroke: A Multiple Method Consensus Approach
People with lived experience of stroke, including their family/caregivers, actively participated throughout the co-design process to develop and test the follow-up service intervention. There was lived experience representation with scoping survey responses, as well as within the working group and independent review group who were involved with the consensus meetings and modified Delphi process. Survey feedback from people with stroke who piloted the developed service intervention was also integral to informing the final service intervention.
Authors
- Rohan Grimley (ORCID: https://orcid.org/0000-0002-7006-6908)
- Tanya Frost (ORCID: https://orcid.org/0000-0001-7027-8735)
- Tara L. Purvis (ORCID: https://orcid.org/0000-0003-3332-5357)
- Monique F. Kilkenny (ORCID: https://orcid.org/0000-0002-3375-287X)
- Timothy John Kleinig (ORCID: https://orcid.org/0000-0003-4430-3276)
- K. Barclay (ORCID: https://orcid.org/0000-0001-9606-7821)
- Dana K. Wong (ORCID: https://orcid.org/0000-0001-9619-1929)
- Jannette Maree Blennerhassett (ORCID: https://orcid.org/0000-0002-9883-047X)
- Julie Lyn Morrison (ORCID: https://orcid.org/0000-0002-6802-6990)
- Grant M. Russell (ORCID: https://orcid.org/0000-0003-3773-2355)
- Vincent Thijs (ORCID: https://orcid.org/0000-0002-6614-8417)
- Adele K. Gibbs (ORCID: https://orcid.org/0000-0001-9231-3554)
- Andrew G Ross (ORCID: https://orcid.org/0000-0003-4680-7419)
- Mark Raymond Nelson (ORCID: https://orcid.org/0000-0001-9941-7161)
- Joosup Kim (ORCID: https://orcid.org/0000-0002-4079-0428)
- Kathleen L. Bagot (ORCID: https://orcid.org/0000-0003-2895-4327)
- M Stirling
- Sandy Middleton (ORCID: https://orcid.org/0000-0002-7201-4394)
- Katherine Jaques (ORCID: https://orcid.org/0000-0003-2514-2737)
- Dominique Ann-Michele Cadilhac (ORCID: https://orcid.org/0000-0001-8162-682X)
- Natasha Anne Lannin (ORCID: https://orcid.org/0000-0002-2066-8345)
- Susan Hillier (ORCID: https://orcid.org/0000-0002-6071-6137)
- Carolyn Scott
- Jennifer Cranefield (ORCID: https://orcid.org/0000-0003-3814-9508)
Institutions
- Griffith University (AU)
- University of Tasmania (AU)
- Queensland Health (AU)
- Royal Adelaide Hospital (AU)
- The University of Melbourne (AU)
- University of South Australia (AU)
- La Trobe University (AU)
- Florey Institute of Neuroscience and Mental Health (AU)
- College of Intensive Care Medicine (AU)
- Mission Australia (AU)
- Stroke Association (GB)
- National Stroke Foundation (AU)
- Wesley Research Institute (AU)
- Eastern Health (AU)
- Sunshine Coast University Hospital (AU)
- Albury Wodonga Health (AU)
- Monash Health (AU)
- Austin Health (AU)
- Monash University (AU)
- Victoria University (AU)
- Australian Catholic University (AU)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-10-29
- DOI
- https://doi.org/10.1111/hex.70474
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Australian Government
- National Heart Foundation of Australia
- Monash University
- Medical Research Council
- National Health and Medical Research Council