Challenges in evaluation and reimbursement of drugs for rare diseases in Saudi Arabia: a Delphi expert consensus
This study provides the first consensus on challenges in DRD evaluation and reimbursement in Saudi Arabia. Addressing these issues through policy reforms, stakeholder collaboration, and data infrastructure enhancement is crucial to optimising resource allocation and patient access. Further research should focus on implementing value-based agreement to ensure sustainable reimbursement strategies for DRDs.
Authors
- Roaa Al Gain
- Mohamed Ahmed Mpharm (ORCID: https://orcid.org/0000-0003-4090-6918)
- Aljawharah Alkoraishi
- Hend Metwali
- Sakra Balhareth (ORCID: https://orcid.org/0000-0002-3858-8407)
- Mansoor Ahmed Khan (ORCID: https://orcid.org/0000-0002-3702-3754)
- Abdullah Alhammad (ORCID: https://orcid.org/0000-0002-9806-2503)
- Ziyad S. Almalki (ORCID: https://orcid.org/0000-0003-1618-4142)
- Laila Carolina Abu Esba (ORCID: https://orcid.org/0000-0003-2459-1485)
- Esraa Altawil (ORCID: https://orcid.org/0000-0002-7484-5423)
- Amal Hassan Al-Najjar (ORCID: https://orcid.org/0000-0001-9703-1177)
- Fatma Maraiki (ORCID: https://orcid.org/0000-0001-6875-1095)
- Consuela Cheriece Yousef (ORCID: https://orcid.org/0000-0001-6386-7582)
- Hussain Abdulrahman Al‐Omar (ORCID: https://orcid.org/0000-0002-0765-0466)
- Hind Almodaimegh (ORCID: https://orcid.org/0000-0001-7620-6054)
- Abdulaziz Alhossan
- Mohammed Al Harbi
- Layla Al Anizy
- Abdulrazaq Al Jazairi
Institutions
- Prince Sattam Bin Abdulaziz University (SA)
- King Saud bin Abdulaziz University for Health Sciences (SA)
- King Faisal Specialist Hospital & Research Centre (SA)
- King Saud Medical City (SA)
- Ministero della Salute (IT)
- King Fahd Medical City (SA)
- King Saud University (SA)
- King Abdulaziz Medical City (SA)
- King Abdullah International Medical Research Center (SA)
- Imam Abdulrahman Al Faisal Hospital (SA)
- Ministry of Health (SA)
- National Guard Health Affairs (SA)
Publication Details
- Journal
- Journal of Pharmaceutical Policy and Practice
- Published
- 2025-10-28
- DOI
- https://doi.org/10.1080/20523211.2025.2575040
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00