Whose Autonomy Matters? Using Relational Autonomy to Analyze Caregiver Roles in Decision-Making for Cancer Clinical Trials
Caregivers' key role in facilitating clinical trial decision-making and protocol adherence merits further attention from bioethicists and researchers. Uncertainty regarding their appropriate decisional role highlights the need for assessment of shared decision-making (SDM) preferences to include caregivers in addition to the traditional patient-physician dyad. Future research should develop and test SDM tools incorporating relational autonomy to identify appropriate decisional roles based on patient-caregiver relationship dynamics and values.
Authors
- Jennifer A. Dorth (ORCID: https://orcid.org/0000-0002-1112-3781)
- Alberto J. Montero (ORCID: https://orcid.org/0000-0002-8221-8120)
- Sana Loue (ORCID: https://orcid.org/0000-0003-0299-4064)
- Mark P. Aulisio (ORCID: https://orcid.org/0000-0002-6423-8523)
- Eric Blackstone (ORCID: https://orcid.org/0000-0003-1780-514X)
- Barbara J. Daly (ORCID: https://orcid.org/0000-0003-1977-5941)
- Susan R. Mazanec (ORCID: https://orcid.org/0000-0001-5925-1566)
- Patricia T. Brandt
Institutions
- University Hospitals Seidman Cancer Center (US)
- Case Comprehensive Cancer Center
- Case Western Reserve University (US)
Publication Details
- Journal
- AJOB Empirical Bioethics
- Published
- 2025-10-02
- DOI
- https://doi.org/10.1080/23294515.2025.2576829
- Primary Topic
- Patient-Provider Communication in Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00