Enhancing Adherence and Mental Well-Being in Pediatric Growth Hormone Therapy: Feasibility Prospective Observational Study of a Family-Centered Digital Companion
The ACDP is a promising tool, and it has been demonstrated to significantly increase the adherence rate, adding value to the patient and caregiver journey, and improving the management of growth hormone deficiency while promoting the overall well-being of family caregivers. Our results show that the digital support provided by the solution significantly increased the quality of life of the caregivers by increasing their psychological, emotional, and social well-being and decreasing their depression, anxiety, and stress symptoms.
Authors
- Alba Xifra‐Porxas (ORCID: https://orcid.org/0000-0002-9023-2432)
- Ioannis Bilionis (ORCID: https://orcid.org/0000-0002-1435-4358)
- Antonio de Arriba Muñoz (ORCID: https://orcid.org/0000-0002-2865-5813)
- Luis Fernández-Luque (ORCID: https://orcid.org/0000-0001-8165-9904)
- Joia Núñez (ORCID: https://orcid.org/0000-0002-0359-6095)
- Ricardo C Berrios (ORCID: https://orcid.org/0009-0008-5449-0267)
- Silvia Quer-Palomas (ORCID: https://orcid.org/0000-0002-4007-8617)
- Patricia Sanz Aznar (ORCID: https://orcid.org/0009-0004-6546-3193)
- Amalia M García-Durán (ORCID: https://orcid.org/0009-0004-7839-1256)
Institutions
- Hospital Universitario Miguel Servet (ES)
- Instituto de Investigación Sanitaria Aragón (ES)
- Santa Cruz County Office of Education (US)
Publication Details
- Journal
- JMIR Pediatrics and Parenting
- Published
- 2025-10-27
- DOI
- https://doi.org/10.2196/67102
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00