Trans data epistemologies: Transgender ways of knowing with data

Amidst proliferating threats to trans rights, transgender activists are using data and data activism to advocate for and to protect trans communities. This transgender-led study asks “How do trans activists use data in their activism?” We interviewed 16 activists engaged in trans community care: from community healthcare to media production to policy making, our participants are making and using data about trans people to serve and support trans communities. Our findings reveal that participants use tactical approaches to data and data science that were consistent with existing data activist literature and contemporary approaches to data refusal. However, what emerged were more than sets of tactics — our participants described ways of knowing with and about data that are grounded in their experiences of (racialized, disabled, aging, queer) transness. Taken together, we consider these ways of knowing to be a trans data epistemology . Drawing on literature from trans theory, data activism, critical data studies, philosophy, and critical social theory we offer a narrative of trans people as creators of knowledge, data-based and otherwise, undergirded by four pillars of a trans data epistemology: categories are provisional and productive, data can be a tool of community care, community well-being is more important than “accurate” data, and data makes us visible to institutions.

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Publication Details

Journal
Big Data & Society
Published
2025-10-27
DOI
https://doi.org/10.1177/20539517251381694
Citations
2
Primary Topic
LGBTQ Health, Identity, and Policy
Type
article
Field-Weighted Citation Impact
4.88
Controls
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article

Trans data epistemologies: Transgender ways of knowing with data

Amelia Lee Doğan, Nikki Stevens
2 citations
Big Data & Society
LGBTQ Health, Identity, and Policy
4.88
article

Trans data epistemologies: Transgender ways of knowing with data

Amelia Lee Doğan, Nikki Stevens
article en
2 citations

Abstract

Amidst proliferating threats to trans rights, transgender activists are using data and data activism to advocate for and to protect trans communities. This transgender-led study asks “How do trans activists use data in their activism?” We interviewed 16 activists engaged in trans community care: from community healthcare to media production to policy making, our participants are making and using data about trans people to serve and support trans communities. Our findings reveal that participants use tactical approaches to data and data science that were consistent with existing data activist literature and contemporary approaches to data refusal. However, what emerged were more than sets of tactics — our participants described ways of knowing with and about data that are grounded in their experiences of (racialized, disabled, aging, queer) transness. Taken together, we consider these ways of knowing to be a trans data epistemology . Drawing on literature from trans theory, data activism, critical data studies, philosophy, and critical social theory we offer a narrative of trans people as creators of knowledge, data-based and otherwise, undergirded by four pillars of a trans data epistemology: categories are provisional and productive, data can be a tool of community care, community well-being is more important than “accurate” data, and data makes us visible to institutions.

Big Data & SocietyVol. 12(4)
University of Washington (US), IIT@MIT (US)
Openalex Percentile: Top 5%
LGBTQ Health, Identity, and Policy
4.88
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