Perspectives of stroke survivors and informal caregivers on home-based mental practice for upper limb recovery after stroke: a qualitative co-design study
In this qualitative study, we explored the views of stroke survivors and informal caregivers regarding three types of mental practice for upper limb recovery: (1) action observation (AO); (2) motor imagery (MI); and (3) combined action observation and motor imagery (AO + MI). Semi-structured interviews and focus groups were conducted between December 2021 and October 2022 with 23 participants (13 caregivers and 10 stroke survivors).Thematic analysis generated three higher-order themes: <i>(1) Mental practice: understanding and recent experience</i>. Although comprehension of AO, MI, and AO + MI varied, participants could provide clear, jargon-free explanations of these methods. <i>(2) Feasibility of home-based training</i>. Caregivers often felt overburdened, confused, and unsupported in home-based care but considered mental practice education useful for rehabilitation. <i>(3) User perspectives on a digital prototype</i> (Webapp). Participants viewed the WebApp interface as overly text-heavy and recommended a more visually engaging design. This study provides new insights into stroke survivors' and caregivers' understanding and perceptions of mental practice and highlights the potential of co-designed digital resources to enhance engagement and support home-based rehabilitation. These findings will inform the iterative refinement of mental practice materials for future feasibility and acceptability testing in chronic stroke survivors.
Authors
- Martin Edwards (ORCID: https://orcid.org/0000-0003-4532-2436)
- Daniel Eaves (ORCID: https://orcid.org/0000-0003-2436-7694)
- Dan Lin (ORCID: https://orcid.org/0009-0000-6619-7756)
- Judith Bek (ORCID: https://orcid.org/0000-0003-3926-1788)
- Jonathan Emerson (ORCID: https://orcid.org/0000-0002-4164-9688)
- Maria Raisa Jessica Aquino (ORCID: https://orcid.org/0000-0002-3989-1221)
- Ellen Poliakoff (ORCID: https://orcid.org/0000-0003-4975-7787)
- Tom Gibbons (ORCID: https://orcid.org/0000-0002-1778-5997)
Institutions
- University College Dublin (IE)
- University of Toronto (CA)
- Manchester Academic Health Science Centre (GB)
- Middlesbrough College (GB)
- University of Manchester (GB)
- Kleijnen Systematic Reviews (United Kingdom) (GB)
- Nano Carbon (Poland) (PL)
- Newcastle University (GB)
- Teesside University (GB)
- KU Leuven (BE)
Publication Details
- Journal
- Neuropsychological Rehabilitation
- Published
- 2025-10-27
- DOI
- https://doi.org/10.1080/09602011.2025.2577376
- Primary Topic
- Stroke Rehabilitation and Recovery
- Type
- article
- Field-Weighted Citation Impact
- 0.00