Perspectives of stroke survivors and informal caregivers on home-based mental practice for upper limb recovery after stroke: a qualitative co-design study

In this qualitative study, we explored the views of stroke survivors and informal caregivers regarding three types of mental practice for upper limb recovery: (1) action observation (AO); (2) motor imagery (MI); and (3) combined action observation and motor imagery (AO + MI). Semi-structured interviews and focus groups were conducted between December 2021 and October 2022 with 23 participants (13 caregivers and 10 stroke survivors).Thematic analysis generated three higher-order themes: <i>(1) Mental practice: understanding and recent experience</i>. Although comprehension of AO, MI, and AO + MI varied, participants could provide clear, jargon-free explanations of these methods. <i>(2) Feasibility of home-based training</i>. Caregivers often felt overburdened, confused, and unsupported in home-based care but considered mental practice education useful for rehabilitation. <i>(3) User perspectives on a digital prototype</i> (Webapp). Participants viewed the WebApp interface as overly text-heavy and recommended a more visually engaging design. This study provides new insights into stroke survivors' and caregivers' understanding and perceptions of mental practice and highlights the potential of co-designed digital resources to enhance engagement and support home-based rehabilitation. These findings will inform the iterative refinement of mental practice materials for future feasibility and acceptability testing in chronic stroke survivors.

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Publication Details

Journal
Neuropsychological Rehabilitation
Published
2025-10-27
DOI
https://doi.org/10.1080/09602011.2025.2577376
Primary Topic
Stroke Rehabilitation and Recovery
Type
article
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article

Perspectives of stroke survivors and informal caregivers on home-based mental practice for upper limb recovery after stroke: a qualitative co-design study

Martin Edwards, Daniel Eaves, Dan Lin, Judith Bek et al.
Neuropsychological Rehabilitation
Stroke Rehabilitation and Recovery
article

Perspectives of stroke survivors and informal caregivers on home-based mental practice for upper limb recovery after stroke: a qualitative co-design study

Martin Edwards, Daniel Eaves, Dan Lin, Judith Bek, Jonathan Emerson, Maria Raisa Jessica Aquino, Ellen Poliakoff, Tom Gibbons
article en

Abstract

In this qualitative study, we explored the views of stroke survivors and informal caregivers regarding three types of mental practice for upper limb recovery: (1) action observation (AO); (2) motor imagery (MI); and (3) combined action observation and motor imagery (AO + MI). Semi-structured interviews and focus groups were conducted between December 2021 and October 2022 with 23 participants (13 caregivers and 10 stroke survivors).Thematic analysis generated three higher-order themes: <i>(1) Mental practice: understanding and recent experience</i>. Although comprehension of AO, MI, and AO + MI varied, participants could provide clear, jargon-free explanations of these methods. <i>(2) Feasibility of home-based training</i>. Caregivers often felt overburdened, confused, and unsupported in home-based care but considered mental practice education useful for rehabilitation. <i>(3) User perspectives on a digital prototype</i> (Webapp). Participants viewed the WebApp interface as overly text-heavy and recommended a more visually engaging design. This study provides new insights into stroke survivors' and caregivers' understanding and perceptions of mental practice and highlights the potential of co-designed digital resources to enhance engagement and support home-based rehabilitation. These findings will inform the iterative refinement of mental practice materials for future feasibility and acceptability testing in chronic stroke survivors.

Neuropsychological Rehabilitation
University College Dublin (IE), University of Toronto (CA), Manchester Academic Health Science Centre (GB), Middlesbrough College (GB), University of Manchester (GB), Kleijnen Systematic Reviews (United Kingdom) (GB), Nano Carbon (Poland) (PL), Newcastle University (GB), Teesside University (GB), KU Leuven (BE)
Openalex Percentile: Top 62%
Stroke Rehabilitation and Recovery
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