Perception of women with classic congenital adrenal hyperplasia and their parents on genital surgery and a diagnosis of differences of sex development: a retrospective survey
Women with classic CAH often undergo early genital surgery, with their parents being mostly responsible for treatment decisions. Despite sexual dysfunction, patients show good sexual quality of life. Most patients and parents have few or no regrets about the decision to have early genital surgery performed and are largely critical of CAH being labelled as DSD.
Authors
- Heinrich Schmidt (ORCID: https://orcid.org/0000-0003-1329-0118)
- Andrea Sappl
- H. Nowotny (ORCID: https://orcid.org/0000-0003-3791-9929)
- Ann-Christin Welp
- Nicole Reisch (ORCID: https://orcid.org/0000-0002-7469-6069)
- Lea Tschaidse (ORCID: https://orcid.org/0009-0003-4413-422X)
- Matthias K. Auer (ORCID: https://orcid.org/0000-0001-7153-8332)
Institutions
- LMU Klinikum (DE)
- Ludwig-Maximilians-Universität München (DE)
Publication Details
- Journal
- Journal of Endocrinological Investigation
- Published
- 2025-10-27
- DOI
- https://doi.org/10.1007/s40618-025-02727-w
- Primary Topic
- Sexual Differentiation and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00