Data protection, interoperability and governance assessment tool: results from a proof-of-concept survey
We developed an <i>ad-hoc</i> tool to monitor and improve data protection, interoperability and governance, which may represent a strategic resource for disease registries and health information systems. The DIGA tool can support institutional self-assessment, fostering regulatory readiness and generating meaningful insights for the implementation of national and EU-level policies. Further studies are needed to assess the reliability of the tool under different conditions, and refine it accordingly for large-scale implementation. Validation across multiple networks and disease domains within CHIEF will allow strengthening its role in preparation of the EHDS.
Authors
- Concetta Tania Di Iorio (ORCID: https://orcid.org/0000-0003-3105-3423)
- Tamara Buble (ORCID: https://orcid.org/0000-0003-1356-4166)
- Elettra Ronchi (ORCID: https://orcid.org/0009-0008-9818-0850)
- Fabrizio Carinci (ORCID: https://orcid.org/0000-0002-7524-227X)
- Nicholas Nicholson (ORCID: https://orcid.org/0000-0003-1149-1426)
- Ivan Pristaš (ORCID: https://orcid.org/0000-0002-6732-7943)
Institutions
- Institut d'Etudes Politiques de Paris (FR)
- Saint Camillus International University of Health and Medical Sciences (IT)
- Hrvatski zavod za javno zdravstvo (HR)
- Joint Research Centre (IT)
- Azienda USL di Pescara (IT)
Publication Details
- Journal
- Frontiers in Digital Health
- Published
- 2025-10-27
- DOI
- https://doi.org/10.3389/fdgth.2025.1685774
- Primary Topic
- Ethics and Social Impacts of AI
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Commission