Expert organisations with “challenging” and “complex” service users: Representation in English and Welsh autism charity reports and accounts

The language and imagery used in Autism charities' communications influences societal understanding of, and attitudes towards, Autistic people. This, in turn, shapes perceptions of whether and how the disabling barriers in society experienced by Autistic people can and should be addressed. Yet, to date, there has been minimal exploration of this discourse employed by Autism charities. We, an Autistic-majority team of researchers, used critical reflexive thematic analysis to examine the language and imagery used in the Trustees' Annual Reports and Accounts of 11 large English and Welsh Autism charities. Representation within these reports emphasises adversities associated with Autism, and the language chosen to portray Autistic people largely describes Autism as an impairment. In contrast, charities represent themselves as the solution to the 'problem' of Autistic people, and thus deserving of increased resources and funding. Government is largely depicted as ineffective and deficient. We argue that these Autism charities are thereby upholding - rather than challenging - the disabling barriers in society experienced by Autistic people. For Autistic charities to better represent Autistic people and improve wider societal understanding of Autism, there is a need for more positive portrayals that challenge the 'charity saviour' trope in charity communications.

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Publication Details

Journal
PLoS ONE
Published
2025-10-24
DOI
https://doi.org/10.1371/journal.pone.0335132
Primary Topic
Disability Rights and Representation
Type
article
Field-Weighted Citation Impact
0.00
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article

Expert organisations with “challenging” and “complex” service users: Representation in English and Welsh autism charity reports and accounts

Kathryn Williams, Helen Abnett, Willow Holloway, Aimee Grant
PLoS ONE
Disability Rights and Representation
article

Expert organisations with “challenging” and “complex” service users: Representation in English and Welsh autism charity reports and accounts

Kathryn Williams, Helen Abnett, Willow Holloway, Aimee Grant
article en

Abstract

The language and imagery used in Autism charities' communications influences societal understanding of, and attitudes towards, Autistic people. This, in turn, shapes perceptions of whether and how the disabling barriers in society experienced by Autistic people can and should be addressed. Yet, to date, there has been minimal exploration of this discourse employed by Autism charities. We, an Autistic-majority team of researchers, used critical reflexive thematic analysis to examine the language and imagery used in the Trustees' Annual Reports and Accounts of 11 large English and Welsh Autism charities. Representation within these reports emphasises adversities associated with Autism, and the language chosen to portray Autistic people largely describes Autism as an impairment. In contrast, charities represent themselves as the solution to the 'problem' of Autistic people, and thus deserving of increased resources and funding. Government is largely depicted as ineffective and deficient. We argue that these Autism charities are thereby upholding - rather than challenging - the disabling barriers in society experienced by Autistic people. For Autistic charities to better represent Autistic people and improve wider societal understanding of Autism, there is a need for more positive portrayals that challenge the 'charity saviour' trope in charity communications.

PLoS ONEVol. 20(10)
University of Hertfordshire (GB), Swansea University (GB), Living with Disability (GB), University Hospital Llandough (GB), Cardiff University (GB)
Openalex Percentile: Top 70%
Disability Rights and Representation
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