Delphi study to elicit expert consensus around decision-making in the treatment of Friedreich ataxia
Consensus was reached on a portion of questions regarding FA diagnosis and assessment, perhaps due to the rarity of disease and panelists' varying FA experience. To improve and standardize management of FA, it is important to establish best practices and educate potential FA treaters as new therapies emerge.
Authors
- Marlon Graf (ORCID: https://orcid.org/0000-0002-6240-8867)
- James McKay
- Sarah M. England (ORCID: https://orcid.org/0009-0008-0232-278X)
- Sheng‐Han Kuo (ORCID: https://orcid.org/0000-0002-9412-931X)
- Richard D. Lawson (ORCID: https://orcid.org/0000-0003-1656-0603)
- Iris Brewer
- Jacquelyn W. Chou (ORCID: https://orcid.org/0000-0001-9880-6894)
- Natalie Land (ORCID: https://orcid.org/0009-0001-7928-5111)
- Cuixia Tian
- Monica Simon
Institutions
- Cincinnati Children's Hospital Medical Center (US)
- Biogen (United States) (US)
- Columbia University Irving Medical Center (US)
- Precision for Medicine (United States) (US)
Publication Details
- Journal
- Frontiers in Neurology
- Published
- 2025-10-24
- DOI
- https://doi.org/10.3389/fneur.2025.1669059
- Primary Topic
- Delphi Technique in Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Biogen