Development of a Diabetes Rural Stakeholder Research Team and Patient-Centered Research Agenda
<b>Background:</b> Unmet type 1 diabetes (T1D) needs in rural communities require collaborative academic-community partnerships to develop and test novel health care strategies. <b>Objectives:</b> The purpose of this community-based participatory project was to (a) build a robust community-academic research partnership, (b) complete individual and community-level research capacity building, and (c) develop a rural T1D patient-centered research agenda. <b>Methodology:</b> We implemented a four-strategy stakeholder engagement plan by (1) assessing capacities for active collaboration; (2) identifying partners within new and established networks; (3) reframing the health issue for research; and (4) developing and nurturing the partnerships. <b>Findings:</b> We successfully met the project objectives and continue to conduct impactful interprofessional, community-engaged research projects grounded in our co-developed research agenda that addresses lifestyle changes after T1D diagnosis, lack of access to care, and reinforce resourcefulness and technology use in rural communities.<b>Conclusion:</b> Developing a stakeholder engagement plan before research implementation can promote sustainable community-academic research collaborations.
Authors
- Elise Boyle
- Emily Knezevich
- Benjamin Feiten
- Vicki Brown (ORCID: https://orcid.org/0000-0003-2891-9476)
- Zsolt Nagykáldi (ORCID: https://orcid.org/0000-0003-1239-6164)
- Amy A. Abbott
- Kameran Dostal
- Vanessa Jewell (ORCID: https://orcid.org/0000-0002-1267-6003)
- Gaurav Dave (ORCID: https://orcid.org/0000-0003-0825-1595)
- Laura Eberly
- Kimberly Radenz
Institutions
- University of North Carolina at Chapel Hill (US)
- Creighton University (US)
- Oklahoma City University (US)
- Breakthrough Institute (US)
- Breakthrough (US)
- University of Oklahoma (US)
Publication Details
- Journal
- OTJR Occupational Therapy Journal of Research
- Published
- 2025-10-23
- DOI
- https://doi.org/10.1177/15394492251381742
- Citations
- 1
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 2.82