Caring for children with spinal muscular atrophy in Greece: parents' and caregivers' experience with the healthcare system
This survey details the concerns and needs and quantifies SMA burden on parents/caregivers of children with SMA in Greece to inform health policy advocacy. Such advocacy should be translated into a national action plan with a focus on integrating care organization and delivery options.
Authors
- Pavlos Golnas
- Aikaterini Ntokou (ORCID: https://orcid.org/0009-0000-8584-8569)
- Chara K. Tzavara (ORCID: https://orcid.org/0000-0003-3242-9066)
- Kyriakos Souliotis (ORCID: https://orcid.org/0000-0003-1624-9444)
- Antigone Karras
- Christina Golna
- Christiana Vasileiadi
- Kornilia Binou
Institutions
- University of Peloponnese (GR)
- Space Hellas (Greece) (GR)
- Institute of Educational Policy (GR)
Publication Details
- Journal
- Frontiers in Health Services
- Published
- 2025-10-23
- DOI
- https://doi.org/10.3389/frhs.2025.1612270
- Primary Topic
- Neurogenetic and Muscular Disorders Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00