The experience and impact of living with idiopathic hypersomnia: A qualitative study of patient perspectives shared in online media
This study expands the understanding of IH beyond clinician and researcher-driven perspectives and clinical descriptions and illuminates its profound impact on all aspects of life from patients' point of view. These insights can help clinicians provide better care, drive patient-centered drug development, and raise awareness of this devastating disorder.
Authors
- Sarah Bermingham
- David Thomas Plante (ORCID: https://orcid.org/0000-0003-2619-5654)
- Alexander Spalding (ORCID: https://orcid.org/0000-0002-1237-7118)
- Elisabeth E. Bennett
Institutions
- University of Wisconsin–Madison (US)
- Gediz University (TR)
- Gemite Group (CA)
- Takeda (United States) (US)
- Takeda (Japan) (JP)
Publication Details
- Journal
- PLoS ONE
- Published
- 2025-10-22
- DOI
- https://doi.org/10.1371/journal.pone.0333497
- Primary Topic
- Sleep and Wakefulness Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00