Transition From Children's to Adults' Healthcare for Youth With (Genetic) Intellectual Disabilities: An ERN‐ITHACA Guideline
Planned, coordinated, specialised, individualised and interdisciplinary healthcare is required to support young people with (genetic) intellectual disabilities. Active collaboration between healthcare providers, researchers and individuals with lived experience is essential both to improve current healthcare and to build a stronger evidence base for successful transition interventions going forward.
Authors
- Sissel Berge Helverschou (ORCID: https://orcid.org/0000-0003-3710-6733)
- Jolanta Wierzba (ORCID: https://orcid.org/0000-0003-0290-1243)
- Katarzyna Milska-Musa (ORCID: https://orcid.org/0000-0001-5120-4191)
- Livia Garavelli (ORCID: https://orcid.org/0000-0002-7684-3982)
- Thérèse van Amelsvoort (ORCID: https://orcid.org/0000-0003-1135-5133)
- Claire Behan (ORCID: https://orcid.org/0000-0001-6528-513X)
- Maria Francesca Bedeschi (ORCID: https://orcid.org/0000-0002-6723-9177)
- Klea Vyshka
- Susan McAnallen
- Charlotte M. W. Gaasterland (ORCID: https://orcid.org/0000-0003-3501-8211)
- Andreas Dufke (ORCID: https://orcid.org/0000-0002-5616-5010)
- Federica Tamburrino (ORCID: https://orcid.org/0000-0002-7456-5595)
- Mary Vasseghi (ORCID: https://orcid.org/0000-0002-7396-9301)
- Connie T. R. M. Stumpel
- Kinga Labunets (ORCID: https://orcid.org/0000-0003-1085-6323)
- AnneLoes van Staa (ORCID: https://orcid.org/0000-0003-4496-3207)
- Mirthe J Klein Haneveld (ORCID: https://orcid.org/0000-0002-0453-2608)
- Tomasz Grybek (ORCID: https://orcid.org/0000-0001-7994-8280)
- Ioana Streață
- Juliette Dupont (ORCID: https://orcid.org/0000-0001-8257-5067)
- Katarzyna Świeczkowska
Institutions
- Oslo University Hospital (NO)
- Trinity College Dublin (IE)
- Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico (IT)
- University of Medicine and Pharmacy of Craiova (RO)
- Maastricht University (NL)
- University of Gdańsk (PL)
- Azienda Sanitaria Unità Locale di Reggio Emilia (IT)
- Emma Kinderziekenhuis (NL)
- Genetikum (DE)
- Administração Regional de Saúde de Lisboa e Vale do Tejo (PT)
- Azienda USL di Bologna (IT)
- Med Center (US)
- Hôpital Robert-Debré (FR)
- Institute of Criminology of the Polish Forensic Association (PL)
- Hospital de Santa Maria (PT)
- Amsterdam University Medical Centers (NL)
- St. James's Hospital (IE)
- 's Heeren Loo (NL)
- Maritime Institute in Gdansk (PL)
- Gdańsk Medical University (PL)
- University of Amsterdam (NL)
- Rotterdam University of Applied Sciences (NL)
- University of Craiova (RO)
Publication Details
- Journal
- Journal of Intellectual Disability Research
- Published
- 2025-10-20
- DOI
- https://doi.org/10.1111/jir.70049
- Citations
- 2
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 6.24
Funders
- European Commission