Codesigning a Neurocognitive Assessment Protocol for Hyperphagia: Perspectives From Stakeholders in Prader–Willi Syndrome
This study demonstrates the value of codesign in tailoring neurocognitive protocols for individuals with complex needs. By integrating stakeholder insights, we enhanced feasibility, accessibility and data quality. The adapted eye-tracking protocol shows promise as a scalable, objective method to assess hyperphagia-related cognitive responses and may inform future clinical trials in PWS and related conditions.
Authors
- Anastasia Dimitropoulos (ORCID: https://orcid.org/0000-0001-7765-1010)
- S.M. Feighan (ORCID: https://orcid.org/0000-0001-6820-9167)
- Áine McNicholas (ORCID: https://orcid.org/0000-0002-4530-5313)
- Edna Roche (ORCID: https://orcid.org/0000-0001-7266-8649)
- Alexandra P. Key (ORCID: https://orcid.org/0000-0002-2669-8334)
- Louise Gallagher (ORCID: https://orcid.org/0000-0001-9462-2836)
- Ciara J. Molloy (ORCID: https://orcid.org/0000-0002-6178-8861)
Institutions
- Centre for Addiction and Mental Health (CA)
- Emory University (US)
- University of Toronto (CA)
- Ollscoil na Gaillimhe – University of Galway (IE)
- Trinity College Dublin (IE)
- Hospital for Sick Children (CA)
- Tallaght University Hospital (IE)
- Mental Health Research Canada (CA)
- SickKids Foundation (CA)
- Case Western Reserve University (US)
Publication Details
- Journal
- Journal of Intellectual Disability Research
- Published
- 2025-10-20
- DOI
- https://doi.org/10.1111/jir.70053
- Primary Topic
- Genetic Syndromes and Imprinting
- Type
- article
- Field-Weighted Citation Impact
- 0.00