A sociotechnical approach to genomic data privacy: a comparative analysis
The sharing of genomic data across international borders presents significant privacy law challenges.Secured computed environments on smartphones allow the storing and processing of sensitive data without the underlying data being shared with processors.A novel technology, described here, to process genomic data within a secured computing environment seems to comport with EU and US privacy laws, despite their differing aims and rules.This technology suggests there may be technological solutions to privacy law fragmentation across jurisdictions, so long as data subjects socially trust the technology and have control over their data.
Authors
- Jacob S. Sherkow (ORCID: https://orcid.org/0000-0002-9724-9261)
Institutions
- Carle Foundation Hospital (US)
- European Union (BE)
- University of Illinois Urbana-Champaign (US)
- Illinois College (US)
- University of Illinois System (US)
- Center for Genomic Science (IT)
Publication Details
- Journal
- International Data Privacy Law
- Published
- 2025-05-01
- DOI
- https://doi.org/10.1093/idpl/ipaf018
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00