A sociotechnical approach to genomic data privacy: a comparative analysis

The sharing of genomic data across international borders presents significant privacy law challenges.Secured computed environments on smartphones allow the storing and processing of sensitive data without the underlying data being shared with processors.A novel technology, described here, to process genomic data within a secured computing environment seems to comport with EU and US privacy laws, despite their differing aims and rules.This technology suggests there may be technological solutions to privacy law fragmentation across jurisdictions, so long as data subjects socially trust the technology and have control over their data.

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Publication Details

Journal
International Data Privacy Law
Published
2025-05-01
DOI
https://doi.org/10.1093/idpl/ipaf018
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
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article

A sociotechnical approach to genomic data privacy: a comparative analysis

Jacob S. Sherkow
International Data Privacy Law
Ethics in Clinical Research
article

A sociotechnical approach to genomic data privacy: a comparative analysis

Jacob S. Sherkow
article en

Abstract

The sharing of genomic data across international borders presents significant privacy law challenges.Secured computed environments on smartphones allow the storing and processing of sensitive data without the underlying data being shared with processors.A novel technology, described here, to process genomic data within a secured computing environment seems to comport with EU and US privacy laws, despite their differing aims and rules.This technology suggests there may be technological solutions to privacy law fragmentation across jurisdictions, so long as data subjects socially trust the technology and have control over their data.

International Data Privacy LawVol. 15(2)
Carle Foundation Hospital (US), European Union (BE), University of Illinois Urbana-Champaign (US), Illinois College (US), University of Illinois System (US), Center for Genomic Science (IT)
Openalex Percentile: Top 61%
Ethics in Clinical Research
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A sociotechnical approach to genomic data privacy: a comparative analysis — Jacob S. Sherkow · International Data Privacy Law (2025) | TGRS Research Map | TGRS