Toward Designing Accessible and Meaningful Software for Cancer Survivors

Cancer survivors experience a wide range of impairments arising from cancer or its treatment, such as chemo brain, visual impairments, and physical impairments. These impairments degrade their quality of life and potentially make software use more challenging for them. However, there has been limited research on designing accessible software for cancer survivors, despite the rich literature on CSCW technologies for cancer survivors. To bridge this research gap, we conducted a formative study including a survey (n=46), semi-structured interviews (n=20), and a diary study (n=10) with cancer survivors. Our results revealed a wide range of impairments experienced by cancer survivors, including chemo brain, neuropathy, and visual impairments. Cancer survivors heavily relied on software for socialization, health purposes, and cancer advocacy, but their impairments made software use more challenging for them. Based on the results, we offer a set of accessibility guidelines that software designers can utilize when creating applications for cancer survivors. Further, we suggest design features for inclusion, such as health resources, socialization tools, and games, tailored to the needs of cancer survivors. This research aims to spotlight cancer survivors' software accessibility challenges and software needs and invite more research in this important yet under-investigated domain.

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Publication Details

Journal
Proceedings of the ACM on Human-Computer Interaction
Published
2025-10-16
DOI
https://doi.org/10.1145/3757678
Primary Topic
E-Learning and Knowledge Management
Type
article
Field-Weighted Citation Impact
0.00
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article

Toward Designing Accessible and Meaningful Software for Cancer Survivors

Rachel F. Adler, Sean P. Mullen, Devorah Kletenik, Zhixuan Zhou et al.
Proceedings of the ACM on Human-Computer Interaction
E-Learning and Knowledge Management
article

Toward Designing Accessible and Meaningful Software for Cancer Survivors

Rachel F. Adler, Sean P. Mullen, Devorah Kletenik, Zhixuan Zhou, Royta B. Iftakher
article en

Abstract

Cancer survivors experience a wide range of impairments arising from cancer or its treatment, such as chemo brain, visual impairments, and physical impairments. These impairments degrade their quality of life and potentially make software use more challenging for them. However, there has been limited research on designing accessible software for cancer survivors, despite the rich literature on CSCW technologies for cancer survivors. To bridge this research gap, we conducted a formative study including a survey (n=46), semi-structured interviews (n=20), and a diary study (n=10) with cancer survivors. Our results revealed a wide range of impairments experienced by cancer survivors, including chemo brain, neuropathy, and visual impairments. Cancer survivors heavily relied on software for socialization, health purposes, and cancer advocacy, but their impairments made software use more challenging for them. Based on the results, we offer a set of accessibility guidelines that software designers can utilize when creating applications for cancer survivors. Further, we suggest design features for inclusion, such as health resources, socialization tools, and games, tailored to the needs of cancer survivors. This research aims to spotlight cancer survivors' software accessibility challenges and software needs and invite more research in this important yet under-investigated domain.

Proceedings of the ACM on Human-Computer InteractionVol. 9(7)
University of Illinois Urbana-Champaign (US), City University of New York (US), The University of Texas at San Antonio (US), Brooklyn College (US)
Openalex Percentile: Top 67%
E-Learning and Knowledge Management
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