Legacy Building from the Perspective of Palliative Care Professionals in Portugal: A Qualitative Thematic Analysis

<b>Background/Objectives</b>: Legacy planning should respect te care preferences of people facing serious illness and integrate palliative care (PC). Legacy creation with the guidance of health professionals in PC assumes a therapeutic nature and aims to respond to the psychospiritual needs of patients and their families. To date, research on professional experiences to create legacy in PC remains scarce. Therefore, this study sought to explore the experiences of PC professionals in legacy creation with the ill person and their family during EoL care. <b>Methods</b>: A descriptive qualitative study was performed through in-person semi-structured interviews with PC professionals from Portugal. Data collection was conducted from February to May 2025. Transcripts from the interviews were thematically analyzed with qualitative data management software WebQDA. The study adhered to the Standards for Reporting Qualitative Research (SRQR) guidelines. <b>Results</b>: Sixteen PC professionals participated in the study. Most participants were nurses (n = 8), followed by six physicians and two psychologists. The mean age of participants was 44.93 ± 10.46 years. Data analysis yielded three themes: (1) the worth of legacy in EoL; (2) enablers of legacy-building process; and (3) challenges of legacy-building process. <b>Conclusions</b>: Legacy is a meaningful resource that gives professionals the opportunity to connect with patients and their families, and to enact value-concordant person-centered care. By providing a greater grasp of legacy construction, our findings may help healthcare providers better understand how to provide dying patients and their families with dignity-conserving care.

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Publication Details

Journal
Nursing Reports
Published
2025-10-15
DOI
https://doi.org/10.3390/nursrep15100366
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
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article

Legacy Building from the Perspective of Palliative Care Professionals in Portugal: A Qualitative Thematic Analysis

Maria Aparecida Ferreira Domingos, Isabel Moreira, Carlos Laranjeira, Ana Fátima Carvalho Fernandes et al.
Nursing Reports
Palliative Care and End-of-Life Issues
article

Legacy Building from the Perspective of Palliative Care Professionals in Portugal: A Qualitative Thematic Analysis

Maria Aparecida Ferreira Domingos, Isabel Moreira, Carlos Laranjeira, Ana Fátima Carvalho Fernandes, Andréa Marques
article en

Abstract

<b>Background/Objectives</b>: Legacy planning should respect te care preferences of people facing serious illness and integrate palliative care (PC). Legacy creation with the guidance of health professionals in PC assumes a therapeutic nature and aims to respond to the psychospiritual needs of patients and their families. To date, research on professional experiences to create legacy in PC remains scarce. Therefore, this study sought to explore the experiences of PC professionals in legacy creation with the ill person and their family during EoL care. <b>Methods</b>: A descriptive qualitative study was performed through in-person semi-structured interviews with PC professionals from Portugal. Data collection was conducted from February to May 2025. Transcripts from the interviews were thematically analyzed with qualitative data management software WebQDA. The study adhered to the Standards for Reporting Qualitative Research (SRQR) guidelines. <b>Results</b>: Sixteen PC professionals participated in the study. Most participants were nurses (n = 8), followed by six physicians and two psychologists. The mean age of participants was 44.93 ± 10.46 years. Data analysis yielded three themes: (1) the worth of legacy in EoL; (2) enablers of legacy-building process; and (3) challenges of legacy-building process. <b>Conclusions</b>: Legacy is a meaningful resource that gives professionals the opportunity to connect with patients and their families, and to enact value-concordant person-centered care. By providing a greater grasp of legacy construction, our findings may help healthcare providers better understand how to provide dying patients and their families with dignity-conserving care.

Nursing ReportsVol. 15(10)
Instituto Politécnico de Leiria (PT), University of Évora (PT), Universidade Federal do Ceará (BR), Escola Superior de Enfermagem de Coimbra (PT), University of Coimbra (PT)
Openalex Percentile: Top 61%
Palliative Care and End-of-Life Issues
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