Living with tracheostomy ventilation for motor neurone disease: a qualitative study of family member perspectives
Enhanced psychological, social, and practical support is urgently needed for families caring for someone with tracheostomy ventilation for MND. Greater awareness of its long-term impact, realistic home assessments, and structured support networks are essential.
Authors
- Nicola Turner (ORCID: https://orcid.org/0000-0002-0870-8324)
- Christina Faull (ORCID: https://orcid.org/0000-0002-0064-8056)
- Martin R. Turner (ORCID: https://orcid.org/0000-0003-0267-3180)
- Eleanor Wilson (ORCID: https://orcid.org/0000-0003-0419-5901)
- Scott Davidson (ORCID: https://orcid.org/0000-0002-6500-7938)
- Jonathan E. Palmer
Institutions
- University of Nottingham (GB)
- University of Leicester (GB)
- NHS Greater Glasgow and Clyde (GB)
- University of Oxford (GB)
- University Hospitals Plymouth NHS Trust (GB)
Publication Details
- Journal
- Disability and Rehabilitation
- Published
- 2025-10-15
- DOI
- https://doi.org/10.1080/09638288.2025.2574536
- Primary Topic
- Family and Patient Care in Intensive Care Units
- Type
- article
- Field-Weighted Citation Impact
- 0.00