Epidermal necrolysis (Stevens-Johnson syndrome/ toxic epidermal necrolysis) as extensive boundary violation: A qualitative study on the illness experience and care needs of survivors in the context of the first German guideline

Healthcare providers should be mindful of life-altering implications of EN and how debilitating illness sequelae can affect survivors beyond a transient emergency. Optimal medical care should facilitate stabilising lost boundaries over the entire recovery period and requires a sensitivity to existential aspects of the disease only accessible through a sustained dialog with patients and family members.