Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru

Despite the stigma attached to mental health in India, our study shows that YABs are a feasible platform to support the involvement of young people in mental health research there. Based on our learning, we set out six recommendations to support YABs in Indian mental health research. These recommendations encourage research teams to: identify diversity and representation goals for YAB constitution; delineate the opportunities and boundaries of youth influence on project delivery; allocate sufficient resources to YAB recruitment, training, activities and communication; consider how young people's learning and accessibility needs and preferences can be ethically surfaced; and plan the monitoring and recording of the YAB's influence as well as the delivery and evaluation of reciprocal benefits to young people directly.

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Publication Details

Journal
Research Involvement and Engagement
Published
2025-10-14
DOI
https://doi.org/10.1186/s40900-025-00781-5
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.00

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article

Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru

Siobhan Hugh‐Jones, Mutharaju Arelingaiah, Sudhir Prabhu, K. Lakshman et al.
Research Involvement and Engagement
Mental Health and Patient Involvement
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Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru

Siobhan Hugh‐Jones, Mutharaju Arelingaiah, Sudhir Prabhu, K. Lakshman, Ritwika Nag, Janardhan Navaneetham, Jayalaxmi Kaniyagundi Podiya, Prachi Kandeparker
article en

Abstract

Despite the stigma attached to mental health in India, our study shows that YABs are a feasible platform to support the involvement of young people in mental health research there. Based on our learning, we set out six recommendations to support YABs in Indian mental health research. These recommendations encourage research teams to: identify diversity and representation goals for YAB constitution; delineate the opportunities and boundaries of youth influence on project delivery; allocate sufficient resources to YAB recruitment, training, activities and communication; consider how young people's learning and accessibility needs and preferences can be ethically surfaced; and plan the monitoring and recording of the YAB's influence as well as the delivery and evaluation of reciprocal benefits to young people directly.

Research Involvement and EngagementVol. 11(1)
University of Leeds (GB), Sangath (IN), National Institute of Mental Health and Neurosciences (IN)
Medical Research Council, Economic and Social Research Council
Openalex Percentile: Top 54%
Mental Health and Patient Involvement
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