Bridging the knowledge gap in rare bone disorders: insights from the APCO Asia-Pacific Rare Bone Disorders Engagement (ASPIRE) survey
This first of a kind survey provides evidence of the stark lack of awareness of RBDs in the Asia-Pacific region. Urgent attention is needed from educators, clinicians, and policymakers to address the educational, structural, and policy gaps identified.
Authors
- Sanjay Kumar Bhadada (ORCID: https://orcid.org/0000-0002-0410-8778)
- Ambrish Mithal (ORCID: https://orcid.org/0000-0002-0822-3212)
- Craig F. Munns (ORCID: https://orcid.org/0000-0001-5898-5808)
- Andrea Trombetti
- Peter R. Ebeling (ORCID: https://orcid.org/0000-0002-2921-3742)
- Roderick John Clifton-Bligh (ORCID: https://orcid.org/0000-0002-1545-0368)
- M K Javaid (ORCID: https://orcid.org/0000-0001-7985-0048)
- Manju Chandran (ORCID: https://orcid.org/0000-0001-9119-8443)
- Maria Luisa Brandi (ORCID: https://orcid.org/0000-0001-9309-6248)
- Shalinder Kaur (ORCID: https://orcid.org/0000-0001-6989-6982)
- Tricia Newell
Institutions
- Vita-Salute San Raffaele University (IT)
- Singapore General Hospital (SG)
- Royal North Shore Hospital (AU)
- Academy of the Social Sciences in Australia (AU)
- Nuffield Orthopaedic Centre (GB)
- Max Healthcare (IN)
- University of Oxford (GB)
- Children’s Health Queensland Hospital and Health Service (AU)
- University Hospital of Geneva (CH)
- Monash Health (AU)
- Duke-NUS Medical School (SG)
- Fresenius Kabi (China) (CN)
- Children's Health Queensland Hospital and Health Service (AU)
- Post Graduate Institute of Medical Education and Research (IN)
- Monash University (AU)
- Geneva College (US)
Publication Details
- Journal
- Osteoporosis International
- Published
- 2025-10-13
- DOI
- https://doi.org/10.1007/s00198-025-07706-8
- Primary Topic
- Alkaline Phosphatase Research Studies
- Type
- article
- Field-Weighted Citation Impact
- 0.00