Development of a Support Program for Children of Parents With Cancer: Expert Consensus Using the Delphi Method

IntroductionParental cancer disrupts family dynamics. Children who have parents suffering from cancer may suffer from caregiver burden syndrome, including physical and psychological symptoms. Few support programs are available for them. In France, these programs are mainly discussion groups.MethodsThe aim of this work was to elaborate a support program for young minor caregivers. The first step was to conduct a systematic literature review, followed by the Delphi method to reach a consensus.Results26 articles were retrieved during the literature review step. 57 items were identified. Two questionnaires (one for children and one for teenagers) were sent by email to 14 experts, working as general practitioners, oncologists, psychologists, or pediatric nurses. After four rounds, experts reached a consensus for each question. Items were evaluated by a yes-no scale. The consensus was validated if a question obtained over 70% of votes. The number, length and content of the sessions, and the healthcare professionals required for their organization were determined by consensus.DiscussionThe next step will be to implement support programs based on this method and test them in real life to evaluate their impact.